Abandoning my PC Journey/Tips & Advice Book

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25343
   Posted 6/21/2013 12:06 PM (GMT -7)   

I have decided to abort my manuscript on my prostate cancer journey & tips/advice.

 

I have seven chapters finished out of an estimated twenty-five, almost 1/3rd done.

 

Main reasons:

 

Most people want to read positive and/or happy ending stories when it comes to medical journeys.  My PC journey has not been positive, certainly hasn’t had many happy moments, and it’s doubtful it’s going to have a happy ending.  So I feel that its best for my story not to be in print, don’t think it would help many people, if anything, put the scare into some if they knew that bad things can happen from PC.

 

Not interested in sympathy from any potential readers.  Honest empathy is nice if sincere, but sympathy isn’t on the list.  I don’t feel sorry for me, just my draw in life, plain and simple.

 

As far as any advice I was giving or attempting to give, already a lot of books on the market covering that.  I wasn’t trying to re-write the Walsh book or any other book on the subject.  I am not an expert on anything PC related.  I decided I couldn’t give any new perspective or unique advice to whatever has already been said or published.

 

When I write, I always have test readers as I am in the midst of a writing project.  I threw the hint out here several times for test readers, but didn’t have as single taker or prospective reader, so that kind of told me something.  My test readers help me know if I am hitting the targeted reader’s for a particular book.  I make writing adjustments depending on the input I get from my test readers.

 

Finally, and I had said this from the start, I am a writer of fiction.  That comes natural for me. I have tried and failed several times over the years to write non-fiction, but I have to face it, it’s just not me, not my style.  I have a lot of imagination that is best suited for fiction.  And I like the literary license one has in fiction writing.

 

I read what I was writing, and it bored me.  That’s a good sign too, if I was bored, others would be too.

 

So I will leave these chapters in a file so to speak, in case I ever have a change of heart.  Probably a few people here better qualified to write a PC based book than me.

 

I tried, I really did, but it’s just not going to happen, will probably start a new work of fiction soon; always have several books floating around in my head at the time.

 

David in SC

 

 


Tim G
Veteran Member


Date Joined Jul 2006
Total Posts : 2249
   Posted 6/21/2013 12:27 PM (GMT -7)   
David--

Sorry to read that your book project on your personal journey and prostate cancer tips didn't work out for you. I'm a lousy reader of draft manuscripts, so didn't volunteer.

Tim
Prostatectomy 2006 Organ-confined
7 years PSAs < 0.1
Prostate Cancer Foundation Supporter

MsWorryWart
Veteran Member


Date Joined Aug 2011
Total Posts : 1466
   Posted 6/21/2013 12:33 PM (GMT -7)   
Purgatory said...
I threw the hint out here several times for test readers, but didn’t have as single taker
or prospective reader, so that kind of told me something.
David in SC


If I had seen one hint, I would have jumped on it! yeah

MikeM53
Regular Member


Date Joined Apr 2013
Total Posts : 397
   Posted 6/21/2013 12:59 PM (GMT -7)   
David, Go with your passion, and if that's fiction, so be it. I think you need to go with your gut on something like this, and if it's not what you feel is right, or best, or what you'd want to be remembered for, than don't do it. Keep writting to us here though, your insight and perspective are great. As far as being neagtive or not uplifting, I read "Man to Man" by Michael Korda, and it left me completley bummed out. I doubt I'd read another book of that type again. just my two cents.

All the Best,
Mike
Age 53
PSA 3/18/13 = 6.4
Biopsy 3/27/13
3 of 12 cores positive (10%, 80%, and 60%)
Gleason Score 3+3
Will be starting SBRT in August.

medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1094
   Posted 6/21/2013 1:05 PM (GMT -7)   
Probably a reasonable decision. Writing a book takes a ton of time, as you know. And there already dozens and dozens of prostate cancer books -- so it's hard to come up with something new and useful. You can spend the time that you would have devoted to this book doing things you enjoy and/or advising people here on HW, who I think continue to find your perspective useful.

81GyGuy
Veteran Member


Date Joined Oct 2012
Total Posts : 2084
   Posted 6/21/2013 1:19 PM (GMT -7)   
David -

As a former librarian, it always makes me a little sad to hear that a book will not be written.

However, you are, of course, the best judge on how to proceed at this point. If for the future fiction it is, then go for it!

Regarding the work you have already completed on the PCa manuscript, I'm sure you know that you would certainly have an eager audience of many of us here who would love to read what you have already done. That is, of course, if you consider it presentable enough for consumption by people who would be very knowledgable readers indeed!

Seriously, have you considered putting up these chapters on a website, blog style? A number of us here, as I'm sure you know, already have some first-rate blog sites up that are a pleasure to follow. If you do, give us the links, and I know many of us will be very happy indeed to click and read!
Age: 67
Chronic prostatitis (age 60 on)
BPH w/ urinary obstruction, 6/2011
TURP, 7/2011
Ongoing high PSA, 7/2011-12/2011
Biopsy, 12/2011: positive 3/12 (90%, 70%, 5%)
Gleason 6, T1c
No mets, PCa likely still contained
IMRT w/ HT (Lupron), 4/2012-6/2012
PSA (8/3/2012): 0.1
PSA (12/7/2012): 0.1
PSA (4/11/2013): 0.1

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25343
   Posted 6/21/2013 3:03 PM (GMT -7)   
ms. worry:

Actually, my original request wasn't really a hint, this is from a post in April of this year:

"I am looking for 2-3 test readers for this project. They will be the only people to pre-read this book in advance. If anyone is interested, e-mail me and tell me why you would like to be one"

Since April, I had asked once or twice again for test readers, and no takers. Not blaming this for my decision to cease working on the manuscript, it was my decision alone. But on all of my published books, always had test readers, and I valued their input. This is the only time I didn't have any.

david

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25343
   Posted 6/21/2013 3:08 PM (GMT -7)   
Thanks for the other replies. Wasn't an easy decision, because I am not a "quitter" by nature, but like most writers, I have both unfinished manuscripts (some going back to the late 1960's) and at least 5 completed but unpublished manuscripts. With 3 published novels, I have the discipline to complete books, so that's not an issue.

Many books I have thumbed through in bookstores and on-line, regarding different people's medical journeys, tend to be feel good stories, and I can understand the appeal. People by nature, tend to shun those with unpleasant stories or unhappy endings. Most don't read to get depressed, lol.

In the chapters I finished, however, it was bringing back a lot of bad memories for me. Forcing me to recall some of the more painful, frightful, and horrifying parts of my journey. While I will never be able to completely forget those incidents, as they say, time heals all wounds.

david
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA 12/12 = 40.x
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012
Severe Chronic Pain, Severe Fatigue, & Urostomy
Member of Prostate Cancer & Chronic Pain HW Communities since 10/2008
“I live in the weak and the wounded” – Session Nine (Movie)

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6760
   Posted 6/21/2013 7:14 PM (GMT -7)   
I think the Korda book was great. I read it before my surgery. It put a lot of what I was told, but did not hear, into perspective. And it set some more realistic expectations.
Moderator - Prostate Cancer
(Not a medical professional)

DaVinci 10/2009
My adjuvant IGRT journey (2010) -
www.healingwell.com/community/default.aspx?f=35&m=1756808
HT (Lupron) 6-mo injection 9/12;Prolia 6-mo inj 12/12

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25343
   Posted 6/21/2013 8:59 PM (GMT -7)   
not familiar at all with that writer or the booked mentioned, will have to look it up and see what the deal was.
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA 12/12 = 40.x
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012
Severe Chronic Pain, Severe Fatigue, & Urostomy
Member of Prostate Cancer & Chronic Pain HW Communities since 10/2008
“I live in the weak and the wounded” – Session Nine (Movie)

SpecialLady
Veteran Member


Date Joined Nov 2011
Total Posts : 1022
   Posted 6/22/2013 4:25 AM (GMT -7)   
Hi David, perhaps you can merge your PC experience, ideas, message with a fictional character in your new fiction-book. Perhaps it is a way for what you have written so far to survive...
Father diagnosed in Jan 2011 (at age 68):
DRE positive, PSA 7.5, biopsy Gleason 7 and 8.
two inconclusive bone-scintigraphies, MR scan showed 2 bone mets
1-Feb-11: Started hormonal therapy (Trelstar+Casodex)
18-Jan-12: 0.055
2-Feb-12: last Trelstar injection
9-Apr-12: 0.078
4-Jul-12: 0.138
4-Oct-12: 1.08
23-Jan-13: 1.15
23-Apr-13: 4.17

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25343
   Posted 6/22/2013 7:50 AM (GMT -7)   
Special Lady,

That's a clever idea really, would have never thought of that. In other books and movies, they incorporate all kinds of ailments, handicaps, etc into the characters, why not PC?

Will consider that in my next fiction project. Only problem, in all 3 of my published books, the main character and hero is a woman (no prostate there, lol), and I used the same name each time, even though the books are written in entirely different time periods, I created a character named Octavia Stevens. I had found a bunch of old envelopes from the 1860's in my NH house hidden away, and they were all addressed to: Miss Octavia Stevens, The Evans Estate, Tamworth, New Hampshire. Been using her name ever since. I often wondered what the real Octavia was like.

david
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA 12/12 = 40.x
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012
Severe Chronic Pain, Severe Fatigue, & Urostomy
Member of Prostate Cancer & Chronic Pain HW Communities since 10/2008
“I live in the weak and the wounded” – Session Nine (Movie)

81GyGuy
Veteran Member


Date Joined Oct 2012
Total Posts : 2084
   Posted 6/22/2013 8:06 AM (GMT -7)   
David -

SpecialLady may be on to something. The history of literature is filled with many famous characters who had some kind of significant illness, handicap, or other challenge.

The excellent example that immediately comes to my mind is that of Sherlock Holmes, who was noted as having an opium addiction, a fact cited in some of the Arthur Conan Doyle stories. You can certainly think of other examples in literature.

Perhaps you can introduce another character into your storyline, a gentleman with PCa, perhaps a friend of Octavia, and weave elements of his life with it into your story. It would probably be a first, as I don't recall ever hearing of a literary character with PCa.

In fact, you might actually bring more attention to PCa with such an approach (not preaching to your readers of course, but "alerting' them about PCa through this fictional means ) so that, possibly, a reader or two might be influenced enough to take action on his own situation, because he now is aware of what may be going on in his own case, thanks to reading your novel.

Sounds like an excellent idea with possibilities!
Age: 67
Chronic prostatitis (age 60 on)
BPH w/ urinary obstruction, 6/2011
TURP, 7/2011
Ongoing high PSA, 7/2011-12/2011
Biopsy, 12/2011: positive 3/12 (90%, 70%, 5%)
Gleason 6, T1c
No mets, PCa likely still contained
IMRT w/ HT (Lupron), 4/2012-6/2012
PSA (8/3/2012): 0.1
PSA (12/7/2012): 0.1
PSA (4/11/2013): 0.1

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25343
   Posted 6/22/2013 8:32 AM (GMT -7)   
81, I still think its a grand idea.

Actually, in my next work of fiction, if I write the book I was planning, for the first time, the hero will be a man, and he would be old enough to have early diagnosed PC. That could be woven into the story. My brain is spinning right now thinking about this aspect.

david
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA 12/12 = 40.x
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012
Severe Chronic Pain, Severe Fatigue, & Urostomy
Member of Prostate Cancer & Chronic Pain HW Communities since 10/2008
“I live in the weak and the wounded” – Session Nine (Movie)

MsWorryWart
Veteran Member


Date Joined Aug 2011
Total Posts : 1466
   Posted 6/22/2013 12:49 PM (GMT -7)   
Purgatory said...
ms. worry:

Actually, my original request wasn't really a hint, this is from a post in April of this year:

"I am looking for 2-3 test readers for this project. They will be the only people to pre-read this book in advance. If anyone is interested, e-mail me and tell me why you would like to be one"

Since April, I had asked once or twice again for test readers, and no takers. Not blaming this for my decision to cease working on the manuscript, it was my decision alone. But on all of my published books, always had test readers, and I valued their input. This is the only time I didn't have any.

david


April was a pretty hectic month for us, so I probably was not online to see it. Sorry. :)

I think merging into one of your works of fiction is a great idea!

InTheShop
Veteran Member


Date Joined Jan 2012
Total Posts : 7966
   Posted 6/22/2013 1:46 PM (GMT -7)   
David,
I always find with writing that you have to follow the energy. Once you lose the emotional/creative energy for a work, it's time to move on. The right thing to write will natural just start happening as long as you keep trying things out. As you know, not every idea makes it all the way to completion.

The fiction idea has promise, I hope you follow that up with some work.

Looking forward to hearing about your next project.

Andrew
I'll be in the shop.
Age 53
PSA 4.2 10/11, 1.9 6/12, 1.2 12/12, 1.0 5/13
GS 3+4
Stage T1C
2 out of 14 cores positive
Treatment IGRT - 2/2012
My latest blog post

Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 3958
   Posted 6/22/2013 2:21 PM (GMT -7)   
David, I'm really warming up to your next novel with PCa playing a role.  I'm thinking that your character names should come from HW.  You can have the mathematician (Compiler), the beautiful heroines (Sephie, Susan R), the evil genius (davidg), the spy without a name (142) and of course the hero who always gets the girl (Tudpock).
 
Jim
Age 62 (66 now), G 3 + 4 = 7, T1C, PSA 4.2, 2/16 cancerous, 27cc. Brachytherapy 12/9/08. 73 Iodine-125 seeds. Procedure went great, only minor discomfort. Everything continues to function normally as of 11/2/12. PSA: 6 mo: 1.4, 1 yr: 1.0, 2 yr: .8, 3 yr: .5, 4 yr: .2. My docs are "delighted"! My journey:
http://www.healingwell.com/community/default.aspx?f=35&m=1305643&g=1305643#m1

davidg
Veteran Member


Date Joined Feb 2011
Total Posts : 4093
   Posted 6/22/2013 2:29 PM (GMT -7)   
Jim - never been accused of being evil or certainly a genius. Picking up women, however, with my Italian pedigree... never been an issue.
40 years old - Diagnosed at 40
Robotic Surgery Mount Sinai with Dr. Samadi Jan, 2011
complete urinary control and good erections with and without meds
Prostate was small, 34 grams.
Final Gleason score 7 (3+4)
Less than 5% of slides involved tumor
Tumor measured 5 mm in greatest dimension and was located in the right lobe near the apex.
Tumor was confined to prostate.
The apical, basal, pseudocapsular and soft tissue resection margins were free of tumor.
Seminal vesicles were free of tumor.
Right pelvic node - benign fibroadiopse tissue. no lymph node is identified.
Left pelvic node - one small lymph node, negative for tumor (0/1)

AJCC stage: pT2 NO MX

81GyGuy
Veteran Member


Date Joined Oct 2012
Total Posts : 2084
   Posted 6/22/2013 3:53 PM (GMT -7)   
"The Case of the Missing Prostate."

Well, the title might need a little work, but the theme sure applies to a bunch of us!
Age: 67
Chronic prostatitis (age 60 on)
BPH w/ urinary obstruction, 6/2011
TURP, 7/2011
Ongoing high PSA, 7/2011-12/2011
Biopsy, 12/2011: positive 3/12 (90%, 70%, 5%)
Gleason 6, T1c
No mets, PCa likely still contained
IMRT w/ HT (Lupron), 4/2012-6/2012
PSA (8/3/2012): 0.1
PSA (12/7/2012): 0.1
PSA (4/11/2013): 0.1

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25343
   Posted 6/22/2013 4:07 PM (GMT -7)   
Tud, sounds like you should be writing that one, you even have your characters all figured out.

Andrew, it wasn't a case of losing any creative energy in that particular project, I could have easily finished the rest of it in another 2-3 months, I just saw some futility in what I was doing, and didn't want to expend the energy to finish a book that I no longer felt was appropriate or needed. This has happened in all of the few non-fiction attempts I have made in the past, doubtful I will start another one.

david
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012
Member of Prostate Cancer & Chronic Pain HW Communities since 10/2008

Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 6/23/2013 5:58 AM (GMT -7)   
David, while I'm sorry to hear of any 'dream' not fulfilled, it is certainly understandable that at this point in your life, you've decided to put this book aside.

Tud, you old flatterer you...BTW, I am available if Oprah should call.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of posterior extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA 0.0 thru July 2009. August 2009 - 0.1, September 0.3, October 0.0. All PSAs <0.1 since October 2009.

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1390
   Posted 6/23/2013 8:22 AM (GMT -7)   
LOL!  Sephie! smilewinkgrin
 
David, you wouldn't have known if you hadn't tried.  I just couldn't be a test reader because I would have cried too much.  Now, onward to a better idea with some challenge!
 
Peace,
Aimzee

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25343
   Posted 6/23/2013 8:55 AM (GMT -7)   
Thanks, Aimzee. And yeah, I did try, I have several other manuscript that I stopped at around the halfway point. The ones I did finish and even the ones that were published, were a breeze for me to write, usually takes me about 3-4 months to write what is considered a standard sized paperback book, once my mind is made up. That works out to be about 75,000 words. Long books are hard to publish, unless you are a Steven King or someone famous. Electronic books are quickly taking over real printed books, saves publishers so much money, and the author actually makes more royalties off a Kindle or Nook edition of a book. I believe all of mine are available on Kindle/Nook format.

If anyone is interested, think I still have 2-3 free electronic editions of "Cold Spots", my latest. Be happy to mail free to anyone interested, they were freebies from the publisher to give away.

david
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012
Member of Prostate Cancer & Chronic Pain HW Communities since 10/2008

81GyGuy
Veteran Member


Date Joined Oct 2012
Total Posts : 2084
   Posted 6/23/2013 9:11 AM (GMT -7)   
David -

As a former librarian who (of course) loves to read, I would be delighted to receive a copy of Cold Spots from you, since you are being gracious enough to extend the offer.

"...mail free..." Do you mean as an email attachment (compressed file, I assume), or in another way?

My email address is in my profile. Please contact me about the details of the transfer.

Looking forward to this! Thank you!
Age: 67
Chronic prostatitis (age 60 on)
BPH w/ urinary obstruction, 6/2011
TURP, 7/2011
Ongoing high PSA, 7/2011-12/2011
Biopsy, 12/2011: positive 3/12 (90%, 70%, 5%)
Gleason 6, T1c
No mets, PCa likely still contained
IMRT w/ HT (Lupron), 4/2012-6/2012
PSA (8/3/2012): 0.1
PSA (12/7/2012): 0.1
PSA (4/11/2013): 0.1

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25343
   Posted 6/23/2013 11:16 AM (GMT -7)   
81,

No, they look like little gift/credit cards. You punch in some code off the back of the card. The front of the card looks like the cover of the book.

Be happy to send you one, will contact you by e-mail for a physical address.

david
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012
Member of Prostate Cancer & Chronic Pain HW Communities since 10/2008
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