Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies & Asthma Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log InJoin Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies & Asthma
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Headaches & Migraines
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Login
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Report suggests changes in the definition of what is cancer

Chronic Illness Forums
>
Prostate Cancer
✚ New Topic ✚ Reply
1 2 3 4 5 6
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Casey59
Veteran Member
Joined : Sep 2009
Posts : 3172
Posted 8/1/2013 7:01 AM (GMT -7)
  TC-LasVegas said... Hey guys, and Gals, I am in a dialogue with.... Tony, regarding your posting from last night…we strongly support your continued efforts—here and in your other cancer-support endeavors— and your unending willingness to continually learn and grow so that your contribution can be better tomorrow than it was yesterday. I offer my support completely independent of which direction the wind is blowing today…I don’t need to “test the waters” first; my faith is solid that you will represent the men of today as well as the "next guys through the PC door." For all of us..."thank you!"
profile picture
FrackMe
Regular Member
Joined : Jun 2011
Posts : 405
Posted 8/1/2013 7:28 AM (GMT -7)
Jim,

Thanks for posting that video. I wonder if these experts realize that 142 has made up his mind and is sick of this subject.

This is clearly one of the most important topics of the day. Thank you for encouraging the discussion and for deleting the posts of some who try to inflame rather than discuss.
profile picture
Casey59
Veteran Member
Joined : Sep 2009
Posts : 3172
Posted 8/1/2013 7:34 AM (GMT -7)
 

zampilot said...
I bet they soon label it "friendly cancer", happy face emoticons and all.............glad mine was a few years ago and it's out. The New York Times shilling for Obamacare.......good luck.

Tudpock18 said...
FYI, here is a clip of Dr. Otis Brawley and Dr. Dimitri Alden discussing this re-naming issue.

Jim

video.foxnews.com/v/2577233211001/scientists-want-to-redefine-common-diagnoses/

 

More shilling...? 

 

Thanks for posting a video of the news coverage, Tudpock18.  (Although I typically think of FoxNews as an entertainment network, not legit news.)

profile picture
Tudpock18
Forum Moderator
Joined : Sep 2008
Posts : 4602
Posted 8/1/2013 7:40 AM (GMT -7)
Casey, I also saw an interview on CNN but was unable to find the clip to post. I'm an equal opportunity watcher, getting giggles from all of the cable networks.

Jim
Forum Moderator-Prostate Cancer. Age 62 (66 now), G 3 + 4 = 7, T1C, PSA 4.2, 2/16 cancerous, 27cc. Brachytherapy 12/9/08. 73 Iodine-125 seeds. Everything continues to function normally as of 7/13/13. PSA: 6 mo: 1.4, 1 yr: 1.0, 2 yr: .8, 3 yr: .5, 4 yr: .2. My docs are "delighted"! My journey:
https://www.healingwell.com/community/default.aspx?f=35&m=1305643&g=1305643#m1
profile picture
davidg
Veteran Member
Joined : Feb 2011
Posts : 4093
Posted 8/1/2013 7:57 AM (GMT -7)
I don't think Fox or CNN are a good source of news.

That said, I think the host with the very nice legs did a good job here.

I don't have a problem with anything said there outside of Brawley spinning his way out off two very important questions the host asked him.

When asked if a patient can be 100% sure the cancer won't grow he did not answer. He didn't, because we cannot be 100% sure and that alone will fail to convert many. As such, he's playing with words and being manipulative.

When asked about how insurance might stop covering certain radical treatments should terms be changed he totally ignored the valid question and went on to spin off into issues of over treatment.

In my email exchanges with Dr. Brawley he openly admitted that none of the studies and findings he over saw had anythign to do with men int heir 40s.
profile picture
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 6614
Posted 8/1/2013 12:16 PM (GMT -7)
I think Frack's comment on 142 was a flame, and provocative, just saying. So by responding to it, I guess I'll accept responsibility now if the thread deteriorates……..
44 mos post op <.1 Pathology 4+3 tertiary5 pni+organ confine 27nodes disected-svi margin- age 70
profile picture
PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6286
Posted 8/1/2013 1:15 PM (GMT -7)
I tend to agree with Logos that Frack's comment was out of line in two respects: first, it doesn't seem to show the respect that the site guidelines require us to show the moderators, and second, it doesn't show the respect that we should show for the honestly held opinions of other members with whom we may disagree.

Please, everybody, let's stay civil.

--PeterDisAbelard

60
Slow PSA rise 2007-2012: 1.4=>8
4 bxs 2010-2012:
1)neg (some inflammation),
2)neg,
3)positive 1 of 14 GS6(3+3) 3-4%, 2nd opinion GS7(3+4)
4)neg.
Mild Pre-op ED
DaVinci RRP 6/14/12. left nerve spared
Path: pT3a pN0 R1 GS9(4+5) Pos margins on rt
Start 24 mo ADT3 7/26/12
Adjuvant IMRT 66.6 Gy 10/17/12 - 12/13/12
Leaky but better, Trimix, VED
Forum Moderator - Not a Medical Professional
profile picture
FrackMe
Regular Member
Joined : Jun 2011
Posts : 405
Posted 8/1/2013 3:26 PM (GMT -7)
PDA,

I was not commenting upon 142's status or posts as a moderator. He has expressed that he has made up his mind on this matter (despite the opinions of medical experts) and has now said that he is sick of hearing about this.

I would respectfully suggest that it is not appropriate for 142 to discourage discussion of this topic amongst those who find it important. It is a huge topic and will only get more important as the Affordable Care panel is charged with deciding whether to cover treatment of a low risk lesion.

Also, I don't understand your comment about honestly held opinions. At one time, G5 was considered cancer and treated. Today, that is universally rejected. If one were to say that in their opinion G5 is cancer, he may be hold that opinion honestly, but no one should be faulted for contesting that.

In any event, no disrespect was intended. Just exasperation with those who would muzzle the discussion.
profile picture
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25440
Posted 8/1/2013 3:53 PM (GMT -7)
What happened to the "big tent" approach that overwhelmingly was approved by poll by members here, and approved by Peter Waite?

Thought the point was that all topics in the spectrum of PC were welcomed, and members could choose to participate in or ignore any topics/ threads that didn't interest them.

It has been working pretty well lately under that premise.

David in SC
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
Open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012
profile picture
davidg
Veteran Member
Joined : Feb 2011
Posts : 4093
Posted 8/1/2013 4:27 PM (GMT -7)
"It is a huge topic and will only get more important as the Affordable Care panel is charged with deciding whether to cover treatment of a low risk lesion."

And that's what this is all about.

ps - You mean the Affordable Care Act?
profile picture
clocknut
Veteran Member
Joined : Sep 2010
Posts : 2715
Posted 8/1/2013 4:56 PM (GMT -7)
I think he may be referring to the recommendations of the IPAB. Just guessing.
Age 67
Dx June 2010.
PSA rose for 3 years to 6.2
Bx shows cancer in 6 of 12 cores, all left side
Gleason 7 (3 + 4)
DaVinci 8/20/10
Negative margins; negative seminal vesicles
5 brothers, ages 52-67 ; I'm only one with PCa
Continence after 7 weeks.PSA 1/3/10: <0.01; 6/12/11: <0.01, 1/26/12: <0..01; 10/12: <0.01
profile picture
logoslidat
Veteran Member
Joined : Sep 2009
Posts : 6614
Posted 8/1/2013 5:12 PM (GMT -7)
Its the whole 2 wrongs don't make a right shtick. I sense you won't let this go, but the point was made and was valid. Im turning the corner.
44 mos post op <.1 Pathology 4+3 tertiary5 pni+organ confine 27nodes disected-svi margin- age 70
profile picture
FrackMe
Regular Member
Joined : Jun 2011
Posts : 405
Posted 8/1/2013 5:18 PM (GMT -7)
Yes, the Independent Payment Advisory Board under the Patient Protection and Affordable Care Act.

Post Edited (FrackMe) : 8/1/2013 6:47:55 PM (GMT-6)

profile picture
Purgatory
Elite Member
Joined : Oct 2008
Posts : 25440
Posted 8/1/2013 10:03 PM (GMT -7)
questions: great and passionate answer, loved it

give you +1

david
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
Open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012
profile picture
142
Forum Moderator
Joined : Jan 2010
Posts : 7298
Posted 8/2/2013 5:52 AM (GMT -7)
I guess I'll go back to my policy of not having an opinion after this. I normally don't offer them. Almost wish I hadn't this time.

In this case it is my personal opinion that this discussion has been beaten to death so many times that I am sick of watching the carnage. Yes, I read every post as best I can, so I see it all. No, I don't have anyone on ignore (I don't feel that would be correct for a Mod). I didn't say don't discuss it, I just said I am sick of hearing about it, much as I get tired of the three-day BC race as it blocks all the roads around my home. I don't begrudge them their race, just block someone else's driveway next year, please. My personal experience tells me that given any opportunity to avoid a doctor, I certainly will, and most men I know are the same. Unless there is blood and bone protruding, it's not a priority. I don't have sick days, so no work is no pay. For those, and other reasons, I believe that anything done to minimize attention to any cancer is bad (including stopping PCa screenings here lately), but even more so our so-called "Good Cancer". Tell the experts what you want about my opinion. I'm sure they could give a rat's arse about a lowly patient. I'm only a statistic. And yes, I hate those too.

Let's see now... 10 years wearing a pad and "worrying" about PSA tests vs. death in agony for weeks due to mets?

Just my thoughts. No one need tell the members of the decision boards about them. And no need to ask about my research or how much time I don't spend digging in archives. There are others here who are happy, and have the time, to do that.

 

profile picture
bluebird123
Regular Member
Joined : Aug 2012
Posts : 482
Posted 8/2/2013 7:51 AM (GMT -7)
While I do agree that many indolent cancers in men and women are treated unnecessarily, on an individual basis it can be a different story. Before my husband was diagnosed with PCa, when he had a borderline high PSA, I found HW and did additional internet research on the disease. I read some books. At that point I barely knew what a prostate was, and knew nothing about PCa. I was very influenced by the idea that PCa was OD and OT. I was convinced that my husband probably had an indolent cancer that would be overtreated. In my ignorance, I thought that getting a PSA would start this process.

My husband did not share my concerns. He wanted a PSA test. When he finally had one done (his third) his PSA had gone up to 5.2. I was very surprised that it had gone up, and my husband had an immediate biopsy. I was shocked to find that he had a high volume of cancer, and realized how wrong I had been about PSA testing. By the time my husband had surgery, his cancer had escaped the prostate (clear margins though).

I am an example of a person who was misguided by what I read on the internet, and misinterpreted it. I now believe that all the talk about how PCa is OD and OT can be dangerous to someone just learning about PCa. I have seen tremendous progress in NY in not overtreating patients. Most of the guys that my husband knows who were diagnosed with PCa in the last few years, had very low levels of cancer and are on some form of AS. The guys that he knows who were treated are glad that their cancer was detected and treated.
7/12 PSA 5.2
8/12 Biopsy, 7 out of 12 cores positive, 5% to 70%, 6 cores G6 and 1 core G7 (3+4)
Age 60, diagnosed and treated at age 59
RALP October 2012, Gleason 3+4, negative margins
Continent

Post Edited (bluebird123) : 8/2/2013 10:07:37 AM (GMT-6)

profile picture
Buddy Blank
Veteran Member
Joined : Jan 2013
Posts : 1634
Posted 8/2/2013 8:28 AM (GMT -7)

davidg said...
"It is a huge topic and will only get more important as the Affordable Care panel is charged with deciding whether to cover treatment of a low risk lesion."

And that's what this is all about.

ps - You mean the Affordable Care Act?

I strongly believe all the talk about "Is it really cancer?" has to do with money and not medicine. It reminds me of the talk I received from my doctor about getting a PSA (they tried to talk me out of it). The urologist was not happy about that and gave me a little heads up on how m-o-n-e-y plays a role.
PSAs: 4.76 (May 2012) 4.23 (August 2012) 3.98 (October 2012) 4.9 (February 2013) 2.2 (June 2013)
Biopsy right prostate: Benign tissue
Biopsy left prostate: Prostatic adencarcinoma, Gleason score 7 (4+3), Tumor involves 2 of 10 cores and 5% of total tissue sampled, Positive for perineural invasion
TRUS measured prostate volume 19.36 cc
Stage T1c
66 Pd-103 seeds implanted (March 2013)
✚ New Topic ✚ Reply
123456

Forum Information

Currently it is Thursday, December 12, 2019 7:27 AM (GMT -7)
There are a total of 3,101,029 posts in 337,817 threads.
View Active Topics

Who's Online

This forum has 165348 registered members. Please welcome our newest member, Peter65Bart.
172 Guest(s), 8 Registered Member(s) are currently online.  Details
10drum, mattam, JasonB176, ChristianWithLyme, Duza, Skypilot56, Pratoman, insomniaaa




HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter PinterestPinterest LinkedInLinkedIn
© 1997-2019 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.