Mike, Happy anniversary.
Your timing is excellent as I start my SBRT at UCLA on Oct 6 with 1 of 3 Provenges last weekend and next one the weekend of Oct 3-6 before SBRT starts Mon Oct 6, and final one the weekend of Oct 17-20 after SBRT ends on Wed Oct 15
This is all thanks to wise advise and counsel from my Mentor Tall Allen to leverage the "Abscopal effect"www.medicalnewstoday.com/articles/242784.php
My situation is a little different. I have much higher Gleason 9 (4+5) and much lower PSA = 0.02, but still 5 fractions of 8 Gy each by Dr KLing at UCLA to prostate, to what we would call the prostate bed had it been removed and to the entire pelvic girdle (not just to the 3 micro lymph nodes contained within the pelvic area, no bony mets any more).
My SBRT's are Mon-Wed-Fri-Mon-Wed rather than your Tue-Thur-Mn-Wed-Fri.
Since I am 66, I had no issues with Medicare/ UHC AARP gettign insurance approvals.
The cradle at UCLA was a little different, just to my feet not a full body cast, and no use of balloon which is what Univ of FL & Shands would have done had I stayed in sunshine state for IMRT/IGRT over 7-9 weeks.
As Tall Allen said, UCLA does not have any special diet recommendations, Milk of Magnesia etc, but I may just follow yours. The treatments shold be over in less than a half hour is what I am told. I did get 3 tattoos to go with the gold markers (you described the process well) and a CTscan for dosage planning.
Per Tall Allen post, I will ask Dr. King for a copy and share it with my mentor Tall Allen.
The only part that concerns me is the diarrhea since I live iN FL but being treated at UCLA, I found it was cheaper to stay with my son and family and advance plan SW Air flights @ $69 each way than to pay LA hotel rates, also better comapny than the 4 walls.
So hopefully I can endure a one hour flight without making too much of a mess, will pack carry on bag accordingly. Also complicates the fleet enema part of the prep. Easy enough to get the fill bladder part done en route and I did pay the extra $12.50 for early boarding to get seat in bulkhead aiseseat closest to the airplane restroom.
As I mentioned before I was born and raised in STL and still a Cardinal fan, then moved to one of your former stomping gounds New England Boston in 1975 after a 4 year stop in Philly area. Left Boston in 1983 for Hartford and in FL since 2000 the year they had the hanging chads in Presidential eleections. Took a lot of grief from friends in Hartford and relatives in STL about
inability to count votes.
Going to be in your native Syracuse in upstate NY for GFMPH Rochester the last weekend of Sept which is why there are 2 weeks between my 1st and 2nd Provenge treatments.
Thanks Mike for chronicling all of this and I will let you know the similarities or lack of same with my process.
66 - DX 64 2/13 PSA 3.68 (6 mo doubling) Gleason 9 (4+5)
T1CN0M1B stage IV w. 7 of 12 cores worst ones 70% right PNI
oligometastatic at Dx 5 tumors 1 right sacro, 2 on
T4 & T9, none visible on 5-21-14 whole bodyscan
1st Lupron 4 month 3-28-13,
PSA down was 3.68, Zytiga June 2014
PSA 0.02 and T < 6 on 9/14,
Prostate shrunk from 50.4 to 15.0
Provenge in Sept & SBRT Radiation in Oct
Post Edited (LupronJim) : 9/19/2014 9:56:05 AM (GMT-6)