10 Years After!

Hello Everyone! Well I haven't posted here since a year ago when it was 9 years after my w/o Radical w/ was done at Johns Hopkins w/o the new (at the time) Da Vinci method and instead I chose an old school hand job as the debate was raging on which was better!! I'm happy to say I'm still at 0 PSA which is checked every 6mo. I spent a lot of time on this Forum way back when I was new to the game and since I was helped so much here back then, I feel obligated to return yearly to post about myself and my history w/ PC.

Although my cancer has yet to rear it's ugly head again (I thank God everyday!) things haven't been all cookies & cream in my life. about 7~8 years ago I developed hypogonadizm w/ while undiagnosed nearly ruined my marriage and sent me off the deep end! Luckily I was finally diagnosed after 2 & 1/2 years of hell. Then I found that at that time there were no Dr's around that would treat someone w/ a history of PC for low testosterone! It took me months to finally find one who agreed that my quality of life was more important than worrying that my PC would return w/ treatment. I hear that this has changed now!! Now after all these years I'm still getting a shot of testosterone every 3 weeks from my wife to instead of going to my Dr's office to save some $.

As far as the rest of my PC related health. I still wet my bed a couple times a week and get up to pee every hour and a half like clockwork! My Uro doc says my problems stem from my bad lumbar spinal problems and nerve damage and not from anything related to my surgery? I just had a left hip replacement 3 weeks ago which I'd been putting off for at least 10 years! I decided to have it done to help w/ my back pain which is much worse than the hip pain. Hopefully after recouping from this hip problem, my back will not be so bad, at least that's what my Dr's think?

So anyway, I've probably written too much unrelated info and not enough PC related info here so I'll blame it on lack of sleep, too little coffee and pain pills for my hip pain! (After 5 days in the hospital and 11 days in a inpatient rehab facility, I'm still in outpatient therapy 3 times a week for the next month> Ouch!) So if any of You have any questions about me or my history I can help with I'll check back and would be honored to. Bless You All!

Pete

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When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!

Sorry to hear about your other issues Pete, but glad to hear about the 0! My brother-inlaw had hip replacement and says he wished he had done it 10 years sooner. Hope you have the same result!

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Age 53
PSA 3/18/13 = 6.4
Biopsy 3/27/13
3 of 12 cores positive (10%, 80%, and 60%)
Gleason Score 3+3
Will be starting SBRT in August.

Zero PSA after TEN years! Now THAT is something to be happy about!

Thanks for letting of us know that it can be done, and it sets a worthy goal for the rest of us to shoot for!

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Age: 67
Chronic prostatitis (age 60 on)
BPH w/ urinary obstruction, 6/2011
TURP, 7/2011
Ongoing high PSA, 7/2011-12/2011
Biopsy, 12/2011: positive 3/12 (90%, 70%, 5%)
Gleason 6, T1c
No mets, PCa likely still contained
IMRT w/ HT (Lupron), 4/2012-6/2012
PSA (8/3/2012): 0.1
PSA (12/7/2012): 0.1
PSA (4/11/2013): 0.1

Pete,

Thanks for coming out of the woodwork to give us this happy news. Ten years is a long time to be cancer free, and is especially inspiring to men and their loved ones here who are newly diagnosed or early in their recovery process. All the best......Tim

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Age 64 Prostatectomy 2006 Organ-confined
PSAs < 0.05
Prostate Cancer Foundation Supporter

Great to hear from you Pete. Hope the hip heals up well and eases the back issues. Take it easy and congrats on the 10 years. Zeros forever! Cheers, Lana & CJ.

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Creed_three (Lana) - with husband "CJ" now aged 55 yrs (49 years at diagnosis). PSA (2006) 3.5. 1 x 5% core of 12 positive at biopsy (Gleeson 7). open Radical Prostatectomy with nerve sparing April 2007 Sydney, Australia. Gleeson 3 + 4 = 7. Small multifocal lesions contained within prostate. Current PSA March 2013 = 0.03 (stable for 6 yrs, fluctuates between .02 and .03 annually, same lab used).

Pete,
Great news on the 10 years of Zeros.

Can you say CURED? Oops, I don't think we can use that word here.

Any way I am happy for you and hope you Heal Well after your recent surgery.

Don't stay away that long, others here need to hear these success stories from some of our Founding Fathers of HW PCa.

Bill from Florida

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Age - 62 now, 61 at time of surgery
Feb. 2012 - PSA 18.5 Biopsy 4/27/12
Positive 10 of 12 cores, Gleason 6 then
Da Vinci Surgery 07/17/12, Dr. Vipul Patel, Florida Hospital, Celebration Health
Extraprostatic extension, positive margins, bladder neck involvement,
Gleason 3+4=7, involving 50% of gland, prostate weight 57 g.
Stage pT3a, Lymph node involvement: 0/4 First 4 PSA tests <0.1