Thank you for references, if you have them handy in PDF format, feel free to send to my e-mail
I'll be happy to send if you make your e-mail available in your profile.
So far my post-op recovery has been very good. The catheter phase is almost over. I will have it removed in two days. The date for removal was set by my surgeon at the day I left the hospital. Is twelve days unusual for catheter removal? I read in the post-op instructions that the catheter should be removed between 10 and 14 days after surgery.
One to two weeks is typical. I just misinterpreted 8/13 in your signature to mean Aug 13th, which would have been almost 4 weeks.
I was happy in choosing Hopkins for my surgery, and my initial preference was to have the standard open retropubic procedure, but I was reassured by my surgeon that with the robotic alternative he would get better results. I am bit in shock with the positive margin, because the Hopkins rate is very low (less than 2%), and because during the visit the day after surgery my surgeon was very confident that the surgery was a great success. In any case, I will try to think positively, and I hope that the G6 score at the margin will not cause trouble. I will ponder on your suggestion of being conservative.
Unfortunately, as you know, even the best surgeons are not perfect. You were probably just unlucky. I know that is cold comfort, but you should not second-guess yourself. You went through the trouble to go to a top institution, there is not much more that you could have done.
I was wondering why did you choose open versus robotic surgery?
Ironically I was initially inclined towards robotic, but the more I researched, the less convinced I was that it was right for me. In his YouTube video Dr Schaeffer from Hopkins who does both recommends
open RRP for palpable disease. Dr. Allaf himself told me that in my case the only real benefit of RALP vs.
open RRP would be less blood loss. While some of my own research suggested that return to continence is faster with RALP, I was very focused (arguably myopically in hindsight) on avoiding a positive margins and the <2% PSM rates published from Hopkins were all for
open RRP (although Dr. Allaf told me his rates for RALP were also ~2%). When I met Dr. Burnett I was sold on
open. My full thought process is detailed here if you are interested: www.healingwell.com/community/default.aspx?f=35&m=2761907
I think I have been doing quite well, but I'm not quite dry yet. For the past few weeks I'll have a few days basically dry and then backslide a bit for a couple days. I have been able to have sex since 9 weeks with help of Cialis and a constriction band, but I definitely have a ways to go to get back to near normal function.