APC Guy said...
... there is now a new program called Start A Cure (www.StartACure.com) which currently lists 23 prostate cancer specific research projects that are looking for funding. They come out of the best institutions including Harvard, MD Anderson, Johns Hopkins and UCLA.
The site was designed as one answer to the terrible funding cuts experienced by cancer research ($7.1 billion cut from cancer research at the NIH resulting from the government sequester etc.)
Descriptions of the proposals appear on the site along with an explanation from the researcher by they are interested in doing the research. The proposals range from prevention to aftercare and everything in between.
Some sample projects included are:
1- An analysis of what goes wrong in the diagnosis of PC in African American Men
2- Testosterone Therapy; Feeling Better While Defeating Cancer
3- Probing Prostate Cancer by Circulating Tumor Cells
4- Fighting PC with Breast Cancer Drugs
5- Who Will Respond to Zytiga and Xtandi?
Start A Cure (www.StartACure.com) has been created and is managed by Malecare, a long time prostate cancer education and advocacy organization. In interest of full disclosure I am the voluntary (we all are) Director of Advanced Prostate Cancer and Advocacy Programs.
Joel T Nowak, M.A., M.S.W.
Survivor of Advanced Prostate Cancer
Joel, I understand why Peter had to snip out some of your original post. However he may have inadvertently removed one of the links that led me to his valuable publication. So if you have the link that took me to another page, other may benefit by signing up for the updates, and not just snagging this publication which is excellent.malecare.org/advancedpcabookV2.1klgfg0e4w8e4fgjfguifgeiu.pdf
entitled "A Working Document for Men with Advanced and Recurrent Prostate Cancer"
I only scanned it so far but it appears to be the most thorough document on the subject I have seen.
It is a little dated since it stills shows Radium 223 as in development, but the materials appear to be very thorough.
When I get some time (leaving shortly for 3 day drive to Rochester GFMPH) I intend to start a separate thread on the financial aid available, again the most thorough listing I have seen - see pages 39-41 on the link.
Thanks so much Joel for all that you do for education and awareness.
65 - DX 64 Feb 2013 PSA 3.68 (6 mo doubling) Gleason 9 (4+5)
T1CN0M1B stage IV w. 7 of 12 cores worst ones 70% right perineural Invasion PNI
oligometastatic 5 tumors 1 right sacroiliac, 2 thoracic vertebral bodies (spine), 2 right posterior ribs
1st Lupron 4 month 3-28-2013, 2nd Aug 1
PSA 3.68 down on 07-08-13 @ 0.2, T=24
UF & Shands treating w curative intent, not just palliative.