Posted 12/6/2013 12:27 AM (GMT -6)
Hello everyone, just checking in and have been reading the latest postings....we've been up to Tennessee trying to get that house remodeled via long distance is a hard task to accomplish, but it is coming along. It is going to be quite an adjustment from living in a 3100 square foot house to a 1500 square foot house, with very, very limited storage, and too small of a garage to benefit on the storage issue either. But it is a "new adventure" and "new chapter" in our life's journey and seems to be helping Ted's attitude, keeping his mind more occupied with this move and remodel than on the impending cancer issue. Although, I don't know how one can ever put that "in the back of their minds".
LuAn, your posting and message is so poignant and so meaningful to me, and I am sure too others, on this forum. I, myself, moved from my parents home into a life of being a wife and soon after a mother, so I have not had a "life alone" without my husband beside me. It would and will be so life altering to "start fresh" at our age, yet that is what we seem to be challenged with when we lose that partner'/soul-mate. Then to be asked, "what brings you happiness", what a question, is there an answer? I know I would have a hard time just living day to day, there would be no sunshine in my life for a long time, let alone "happiness". I so understand your turmoil, grief and anger.....life and death are so confusing and dealing with is aftermath is harder still. I can't put into words what my feelings are for you and everyone who has followed in your footsteps (nhwife-Susan, Passages-JaneBjnemo-Barb, to name a few). I know that time is not so far away for us either, but I am, as you say, enjoying and making the most of every minute that we have together.
Radsgrrl22(Susan), I know that it is hard, trying to "deal" with so many issues (job, house chores, partner's situation), you may be exhausting yourself and that will also cause your "highs and lows to be compromised. I have days on end where the slightest word or look will make me "lose it"...then again, there are those days that I am better and can "deal" with everything on a better scale. Make sure you are taking care of yourself as well, this will also help you with "dealing" with all of the other issues at hand. Your sleeping schedule is not letting you get into that "deep sleep" that will help your body and mind relax and "shut down" for awhile. This is very necessary for you and Bob, he has to get that "deep sleep" as well. See if you can get enough pain and sleep medication so Bob & U can sleep at least through about 4 hours at a stretch.
Dreamer44 (Pat),what's the status on Mark and his medication schedule...have they taken him off Xtandi.....has he had the CT & bone scans yet? How is he feeling? Appetite, weight?
littlenm (Cathy), keeping the disease a secret is his way of "dealing" with the PC and he will be the one who will have to face up to what is going on sooner or later. If he is feeling well, and able to enjoy life, go"with the flow" so to speak. Just keep an eye on his "numbers" and make sure he continues to keep "track" of everything, it's better to catch the numbers early instead of letting them skyrocket before you contact the docotr. Continue to be positive. When my husband was first diagnosed he had the same kind of response, he wasn't going to live and we sold all of the "toys", boats (several), place on the lake,etc....and here we are 13 years later and he is still going "somewhat strong". Keeping a watchful "eye" and having good "cutting edge" doctors have been our lifeline.
enjoylife (Cathy), Yea on the PSA holding...hope it continues....
Zimac and smo1 - how are you guys doing?
nhwife(Susan), Passages(Jane) and Jitters99(LuAn), I know it hurts to read all of our postings and it brings back those memories and feeling that need to be folded up and stored in your memory banks. There will come a time when you all no longer "check in" and I will totally miss you, but also will understand, that life and time moves on, even if we wish it would "stand still", just a while longer. You all will be facing the new year with different opportunities and a new direction, new paths to follow, and maybe, just maybe the sun will shine in your lives again and somewhere down that path, you will find happiness....
I'm going over to the Jevtana posting and see what's going on there.....wish us luck in getting this house sold and that we go ahead and move by the end of the year......new year, new beginnings, new hopes.
Love, hugs....and prayers to all.....(won't post the signature, it's too long & takes up to much space)