This will be my final post at Healingwell for 2013 and perhaps beyond.
For all the years of support I have received ~ thank you.
I now do volunteer work as an advocate for prostate cancer awareness and research, I have never been paid in spite of accusations, at various patient advocate opportunities and I will keep on keeping on. My reason for leaving Healingwell is because of the same reasons I left being a moderator of 4 years here. Sometimes you are just made to feel not welcomed anymore. I now receive with apparently full consent of some, harassing and mean emails and it's just not a healthy environment.
The following are priorities I endorse:
1. Be educated about
your health. Men are not as adept at their health as women. Women ask questions men don't ask. A PAP smear or a mammography are not secretive procedures. You obviously know you are being screened and will ask questions that men, whom are screened with a blood test and possibly blindly, don't know to ask.
2. Never stop learning. Over my seven years here I learned that information is constantly changing. And it is not easy to get the latest information. I tried to share it but it led me here today. Seven years ago is a long time. When I was diagnosed to today the landscape has changed drastically. Always leave an
open door for new information.
3. Share. Talk to your brothers, sons, uncles, fathers, grandpa, any man in your life. Anything you say about
your experience falls under the gift of giving. And it matters.
4. Screening. I support screening educated men 100% no matter the circumstances. I support limiting the medicos to leading screening men that they do not verify their education with. As a live support group leader I know that there are hundreds of thousands of men screened without their knowing that jump into therapies that they never researched. It is a major line of concern in the medical industry and it should be. Better tools are needed to screen men to differentiate between indolent or aggressive cancer. Until then prodding the screening of the right men at their most high risk situations in life is logical. But no man should ever be denied screening when a man requests it regardless of age, race, or education level. Each case needs to be dealt with at the patients level.
I wish all well here. My #1 goal is surviving and helping mens lives while preserving their health at the highest level. I am looking for new ways to get information out there so stay tuned for that. For now I recommend the "New" Prostate Cancer Infolink as a resource for daily updates. Mike gets much of what I post and he also reports on it, I think, objectively. I'll continue to feed information for him to post.prostatecancerinfolink.net
December 22 will mark a day for me that changed my life. In 2006, I was diagnosed with what turned out to be advanced prostate cancer. And December 26 will be the day I celebrate as well. It's the day after several days without sleep and fear rampant in my life that I found Healingwell. It's the day I became a survivor of cancer.
May peace and love be with you always.