Severe penile pain after robotic prostatectomy- need advice!

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Christyrc7
New Member


Date Joined Jan 2014
Total Posts : 3
   Posted 1/23/2014 10:54 AM (GMT -7)   
My father underwent robotic prostatectomy surgery 4 months ago.
He has severe pain in the tip of his penis daily. Not just when urinating....constantly.
It hurts to walk, wear clothes, sit down, etc. He says it's making life unbearable.
Doctor couldn't adequately explain the pain and prescribed vicodin which does not help.
My father wonders if it could be due to nerve damage from the catheter.
Has anyone experienced this kind of pain for this long?
Is there anything he can do or take to help?
Thank you.

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4791
   Posted 1/23/2014 12:44 PM (GMT -7)   
Welcome to the site.

It sounds unusual. Is it safe to safe the doc ruled out a urinary infection?

PeterDisAbelard.
Forum Moderator


Date Joined Jul 2012
Total Posts : 5640
   Posted 1/23/2014 12:56 PM (GMT -7)   
Hello Christy,

Pain in the glandular urethra is often "referred" pain, often from the bladder. Men who have urinary tract infections will often feel the pain there when their bladder is irritated. Sometimes you tend to feel the pain where the nerve ends when the actual problem is somewhere else along the run on the nerve (in this case the pudendal nerve).

Lots of guys here complain of that pain although it sounds like your dad's is unusually bad. My theory is that in a lot of cases it is caused by irritation from the stitches that were used to stitch the urethra to the bladder neck. Those stitches will be attacked by his body as he heals and absorbed but that process can take months and months and in the meanwhile they can be irritating.

His problem could also be some sort of entrapment of the pudendal nerve in the area of his surgery.

The good news is that the pain usually goes away eventually. While guys are waiting for it to go away they will try all sorts of remedies and the remedy they are using when the pain goes away will be the one that they think worked.

Not much advice here. Talk to his doctor about the possibilities that it might be "referred" pain. That'll at least give you some different things to try while he waits to get better.

Here are a few links you might check out. None of them apply perfectly but they will give you ideas of what might be going on...

prostatecancerinfolink.net/2013/12/30/peripheral-pain-after-treatment-for-prostate-cancer/
www.spuninfo.org/index_files/WhatIsPN.htm
malepelvicfloor.com/urinary.html
60
Slow PSA rise 2007-2012: 1.4=>8
4 bxs 2010-2012:
1)neg (some inflammation),
2)neg,
3)positive 1 of 14 GS6(3+3) 3-4%, 2nd opinion GS7(3+4)
4)neg.
Mild Pre-op ED
DaVinci RRP 6/14/12. left nerve spared
Path: pT3a pN0 R1 GS9(4+5) Pos margins on rt
Start 24 mo ADT3 7/26/12
Adjuvant IMRT 66.6 Gy 10/17/12 - 12/13/12
Leaky but better, Trimix, VED
Forum Moderator - Not a Medical Professional

RobertC
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Date Joined May 2011
Total Posts : 1297
   Posted 1/23/2014 1:52 PM (GMT -7)   
I had pain an inch from the tip after cryo /freezing procedure. The doctor would not say what it was from for apparent legal reasons. My catheter hurt like crazy. My symptoms were pretty bad and affected my sleep and nerves.
I slept on my back for several months. I also had irritable bladder and urgency. The symptoms improved over time for me.
If it is referred pain maybe Hytrin or alfuzosin might help relax things. Good luck.
Gleason (3+4) 7, PSA 5 in Nov. 2010 age 63. cryoablation in Jan. 2011.
PSA April 29 2011 <,04, Jan. 12 .05, July 12 .06, , 12/24/12 .04, 6/26/13 .04
Taking metformin and low meat diet Spring 2012. Some supplements.

Post Edited (robertC) : 1/23/2014 1:55:46 PM (GMT-7)


Christyrc7
New Member


Date Joined Jan 2014
Total Posts : 3
   Posted 1/24/2014 7:10 AM (GMT -7)   
Thanks everyone.

Christyrc7
New Member


Date Joined Jan 2014
Total Posts : 3
   Posted 2/1/2014 3:43 PM (GMT -7)   
Just an update: No infection, but burning and pain has significantly decreased after starting Urelle.

No Patience
Regular Member


Date Joined Dec 2013
Total Posts : 165
   Posted 2/1/2014 6:34 PM (GMT -7)   
Peter thanks for those links . you have answered my questions before on this matter
I have complained and still am about a feeling (not a pain ) in the tip of my penis .
I am 8 weeks post ralp and its driving me crazy . my doctor said its a nerve that runs from the bladder all the way to the tip of penis , so this is what you saying is refered pain . he isn at all concerned but I am suffering immeasurably from it . it does sometimes feel better then wham I have a bad day . just feels like there is pee in the tip ready to come out , but there isn't any , which is good thing . any thoughts or advice ?

PeterDisAbelard.
Forum Moderator


Date Joined Jul 2012
Total Posts : 5640
   Posted 2/1/2014 9:21 PM (GMT -7)   
Impatient one,

It's possible that ibuprofen might help. Your discomfort is caused by irritation and/or inflammation in your internal stitches and ordinary pain killers might actually help, especially those that are anti-inflammatories as well. If that doesn't work, you might ask your doctor if he minds if you try some pyridium to see if it helps with your discomfort. It's a urinary analgesic that is available over the counter in the US and Canada. If you are married it is quite possible that your wife has some. The ladies get more UTIs than we do and it is quite a common drug with them. If you are leaky you will have to stay on top of the pads because it will turn your urine bright orange and it stains.

logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5383
   Posted 2/2/2014 12:04 AM (GMT -7)   
My surgeon told me that the internal slicing and dicing create the pain and it has to go somewhere. I had penile pain up to 8 mos post surgery. Is the pain excruciating or is it "just pain". is your concern the pain itself, to be sure somewhat, but is the concern the pain or the fact that the pain is there and yo are concerned that it is not normal? I assumed it was part of the healing process and it did eventually go away, just like the pain of on external cut will last til it has healed. My belief... yours is "normal " healing pain. I f your doctors are just giving you pain reducing treatment, I would assume they believe this as well or they would be doing some thing more curative rather than relieving.
44 mos post op <.1 Pathology 4+3 tertiary5 pni+organ confine 27nodes disected-svi margin- age 70. Caveat. Any statement, position,etc made in my post heretofore should be considered to have the word "arguably" included. The word should be considered self evident, even when not specifically written. Arguably as in a court of law. Logo
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