(Adapted from this thread
. I think this topic deserves its own post to help people find it via the site's Search tool. Hopefully the mods will also include it in the "Newly Diagnosed with PC?"
sticky post.)What you should know about Peryonie's Disease
Peyronie's Disease is an unexplained
scar formation in the penis, which typically causes unusual curvature and shrinkage. This condition occurs in 3% (some research indicates as much at 9%) of the healthy male population. However, Peyronie's occurs in 15% of men who have had prostate surgery.
This condition can make erections painful and intercourse nearly impossible (depending on the amount of curvature). As you can imagine, this can take a toll on a man's ego and lead to emotional stress.
It is unknown what causes Peyronie's or why men who have undergone prostate surgery are more likely to develop this condition. Note that Dr. Mulhall feels strongly that erection injections (such as bimix/trimix) do not cause Peyronie's.
Treatment options vary. In December 2013, the FDA announced
approval of Xiaflex
injections to treat Peyronie's in men with curvature of 30 degrees or more. Dr. Levine and Dr. Mulhall also use traction/stretching therapy to correct curvature and shrinkage, based on Dr. Levine's published research
. (Other research on traction therapy here
.) Other treatment options are also available to address the curvature/shrinkage, but there is no known cure at this time.Most Urologists have little experience (or none at all) diagnosing and treating Peyronie's.
It is very
important that anyone experiencing penile curvature after prostate surgery get treatment from a doctor who knows how to diagnose and treat this condition. The two of the best Peyronie's doctors in the world are Dr. John Mulhall
in New York City and Dr. Laurence Levine
in Chicago. If you can't see one of them, then you should should see a doctor recommended by the Peyronie's Association
. (Dr. Mulhall and Dr. Levine are on the board of the Peyronie's Association and are involved in the creation of that list.)
For more information:
Diagnosed and treated in 2013 at 41 years old.
DX 1/28/13 (PSA 9; BX G3+4, 5 of 12 cores). RALP 4/3/13 w/ Dr. Tewari.
Nerves spared, T2c, N0, G4+3, tumor 10%, organ confined, -margins, -EPE, -SVI, +PNI.
Full continence. PSA undetectable.
ED rehab (bimix+pills) and Peyronie's treatment w/ Dr. Mulhall.
/ Surgery Recap
/ Pathology Report
/ PSA History
I recommend these links:
- NCCN Prostate Cancer online book
(PDF download version
- Questions to ask a Robotic PCa surgeon
and/or a Brachytherapy radiation seeds specialist
- Dr. John Mulhall's excellent book
and YouTube videos (I
) on ED due to PCa treatment
- What you should know about Peyronie's Disease
Post Edited (gedman) : 8/5/2014 4:39:35 PM (GMT-6)