Hey there. My name's not Peter. I'm just Peter on the forum.
I don't make a big deal of anonymity -- quite a few of you know my real name, some of you are Facebook friends -- but my real name has never appeared on this forum and probably won't for a couple of years, at least. I find it convenient to separate the various components of my online activities so that search engines don't routinely tie them together.
The anonymity offered by this forum allows men -- after a little practice -- to discuss the impact of their prostate cancer treatments on their sex lives, their relationships, and their requirement for watertight undies. We routinely share "too much information" that our real-life friends wouldn't want to know. Because we can't talk about
that stuff anywhere else. Because we can talk about
So I understand why anonymity is important. We should never ask anyone who they are or where they work if they don't want to say.
From time to time we get some guy who has wandered in from some odd corner of the internet who has convinced himself that if people would switch to a diet of, say, certified organic banana slugs and wheat grass, that it would cure all diseases, including prostate cancer. And they show up on our forum to spread the word.
I have to admit that in cases like that I will often ask the newcomer to tell us how prostate cancer has touched his life. I challenge them to convince me that they have a legitimate connection to prostate cancer that will allow them to participate in our peer-to-peer prostate cancer warriors forum. Before they can lecture on the astounding health benefits of slug snot I ask them first to tell us when they were diagnosed, and how they are doing. If their interest is for a father, or a husband, or the guy next door, that's OK. I just want them to have something -- as a token for admission, as it were.
I generally use this technique to run off guys who are a little too keen in offering to 'help' us. I am much less likely to apply my standard rigorously to people who come to us needing help. We have guys visiting our ED threads, for instance, who don't have prostate cancer but do have trouble. We generally make them welcome.
We recently had a newish member come through, posting on an Active Surveillance thread and sounding very technically oriented. The guy knew a lot about
the research and the issues for active surveillance but was oddly reticent to tell us anything about
himself and his personal experience with prostate cancer. We had a member or two who had noticed this and they were barking at him like dogs that have treed a raccoon.
And... I dunno.
We seem to have run the guy off.
Maybe that's unfortunate.
My impression is that he was a medical professional of some sort, quite possibly a physician, and that he has prostate cancer. The reason he has all the research on Active Surveillance at his fingertips is likely to be the same reason that many of us learn more about
this danmable disease than we ever wanted to know. This site can be a bit awkward for medical professionals but they should be welcome here. Maybe if we could be just a little less confrontational...
... but on the other hand if he was going to participate he would have to
open up sooner or later about
his PCa. There are just too many people out there with opinions about
what we should do.
Slow PSA rise 2007-2012: 1.4=>8
4 bxs 2010-2012:
1)neg (some inflammation),
3)positive 1 of 14 GS6(3+3) 3-4%, 2nd opinion GS7(3+4)
Mild Pre-op ED
DaVinci RRP 6/14/12. left nerve spared
Path: pT3a pN0 R1 GS9(4+5) Pos margins on rt
Start 24 mo ADT3 7/26/12
Adjuvant IMRT 66.6 Gy 10/17/12 - 12/13/12
Leaky but better, Trimix, VEDForum Moderator - Not a Medical Professional
Post Edited (PeterDisAbelard.) : 4/1/2014 10:39:04 PM (GMT-6)