Finally dry after almost 2 years!
After a very painful attempt at my first activation 2 weeks ago, the second attempt today was successful. I was hesitant to make this post until I was able to urinate on my own using the AUS several times.
I went to my urologist today, who has been with me through my entire PCa journey, to have it activated. He spent all the time it took for me to understand the process. I emptied my bladder first before activation then he activated it. After that, he showed me where to place my fingers, what to feel for and how to squeeze it. Once it was squeezed, it takes a few minutes to recycle then we did it again.
At my first attempt with my surgeon, he activated it then sent me out to fill up my bladder with water. Once I was ready to urinate, about
30 minutes later, I went back and he showed me how to do it once in the bathroom. Then he sent me on my way.
I had no idea I had to press the controller as hard as I do. It is almost like pinching somebody on the arm until it hurts. It really doesn't hurt but you need to press the controller with your thumb and index finger until they are almost touching. When you are successful, you will feel the controller collapse sending the fluid to
open the cuff.
What an amazingly simple device this is to end incontinence! Yes, it is different having a controller installed in your scrotum and a ballon in your belly, but the thing works as advertised.
My urologist was taught at the University of Miami by my surgeon. When I elected to have the AUS installed to end incontinence, I decided to have the teacher rather than the student operate on me. He is a rock star type surgeon who has installed hundreds of them. But since his practice is so busy, he is rushed from one patient to the next and doesn't allow the time necessary to teach the patient how to work the AUS.
When I explained what happened with my first attempt at activation, my urologist said he understood. He said my surgeon is a great doctor but he has always been "all over the place".
Thanks to everyone who has helped me through this chapter in my life. From your previous experiences to your words of encouragement. This adventure, like my Da Vinci surgery, is now complete and I can move on.
To any of you newbies who are afraid of the side effects of surgery and are looking for an easier way to fight the beast, there are solutions to side effects, ex. Implants, Trimix, slings, AUS, etc. Make the best decision for you when choosing a treatment plan. The first priority should always be stopping the cancer from killing you!!!! You may have heard the saying around here, dead men don't have sex. Kill the beast and go on from there.
As all of us know, we need to be ready for the next bump in the road and it ain't over 'til it's over! I have my next 3 month check up in 2 weeks and the anxiety will begin again. Will recurrence show it's ugly head? Will I remain in the Zero Club?
For now, AUS to me stands for ALL URINE STOPPED!
Bill from Florida