Just happened to be logged out of HW, rare for me, sometimes my Windows 8 logs me out of all sites with a password.
And gee, what a surprise, Beejanes. Over the years, the only time I have ever seen you post to me, is either to insult me, or critiszie me, or make some other foul remark in my direction. You have been on my ignore so long I forgot about
you till I saw this evening what you wrote.
You know nothing what you speak about
. How can you say I don't know pain?????? What presumption on your part. And for the record, over the past 40 years, I have been on many a death bed scene, offering comfort to those dying of any number of horrible cancer deaths, often being the person holding the hand or praying for the person as they leave this world. I have seen the hideous and horrible and prolonged painful deaths, up close and personal, and seen people out of their mind in pain even on heavy doses of morphine. I know a lot about
pain. Who are you to say what I feel or don't feel? Do me a favor, since you obviously have always had a distaste for me, don't post on my threads. I normally wouldn't see what you write, and I see you haven't changed.
So because I go shopping and on picnics makes me not be a person in severe pain???? Again, who are you to assume what I feel and don't feel. My oncologist already has stated that I am dealing, and have been dealing with more severe pain than many men that he works with that are in end stages. And it frustrates him too, that he can't control my pain better than he has already.
I struggle to run errands, to shop, to go to church, to even drive my car at times. I don't have to justify my life to you, of all people. Don't know where all your hatred is coming from, all this animosity towards me, I never did you any wrong, ever. So I ask you, leave me alone. Every little thing I do, takes so much mind over matter on my part to accomplish. I stubbornly force myself to do things, lift things, whatever, that I shouldn't be doing, because I can't just lay around and suffer and do nothing. SO I push, push, and keep pushing myself, then have to pay for it days after. Even my once a week oncology rehab is a real struggle. Perhaps I will give you the name and number of my therapist, she has worked with me for over 3 years and knows some days, that even simple walking gives me so much pain. But I don't have to justify my struggles, pains, or life to you or anyone else, especially to someone as hateful as you are towards me.
Mel, I purposely didn't say Sonny's name out of respect to him, but you had to spell it out. I was trying to use some discretion, you didn't. Our cases were very similar. And its not like I am not being tested for PSA. Already told you over several threads, that a C11 Acetate PET is next in my future, so why keep harping that nothing is being done? WW is perfectly appropriate under the circumstances, its been buying me some time while we try to fight my other issues and problems, so why do you have an issue with that?? My doctor feels once or twice a year is sufficient right now. You do not know that it is triple digit, you are assuming. It may have gone down, who knows, it may have held steady. My doctor said he has had men that reached 100 or so, and then it does hold steady. He said my PSA number, whether it be 20 or 100 or ?, isn't going to change his opinion to start me on an advance treatment or not, he's looking and holding off for any evidence of mets. And 3 years later, he's still more inclined in my case to try chemo first, not HT. Said in cases like mine, the chemo has shown a better job of shocking the cancer, as versed to slowing it down with HT. Since his specialty is advanced PC, why do you constantly question his judgment? Do you know more than a doctor?
And if I, or any other OP wants a thread of their own locked, I sure don't need your permission or ok. You keep feeding the fire with me, so I can only assume you get some kick out of pushing my buttons. But I know how to take care of that in the future. Tried to be the nice guy once again, but I can see that was another mistake
I plan to see the VA in Columbia late this month. To see the head of both their oncology department and their head of neurology, and get a whole new view of what's going on. I am seeing their oncology guy, without the knowledge of my doctor, just to get a new take. If they want to do a PSA test of their own, fine by me, if not, fine by me. I will also ask if they have any way to have a C11 Pet scan done. Meanwhile, all my extensive dental work by the VA needs to be taken care of, before that becomes a bigger problem
thanks susan, sometimes, there are patients that are difficult to have their pain controlled, meds or no meds.
al, thanks also, unfortunately, SC is a state that will never agree to medical THC use or MM, just not going to happen. If it were available, not sure how I would feel about it, have mixed opinions, whether it be legal or not, had some bad episode in my distant youth, that I would rather not repeat. But if it were legal here, I would at least investigate and consider it.
Post Edited (Purgatory) : 4/19/2014 7:27:09 PM (GMT-6)