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Any Boston area MDs expert about prostate cancer & bisexual/gay men?

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Tudpock18
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Posted 6/15/2014 2:49 PM (GMT -8)
Yeah...what 142 said. Let's move on unless anyone has any insight to help answer the original questions posed by the OP.

Thanks,

Jim
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James C.
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Posted 6/15/2014 4:38 PM (GMT -8)
Maybe the issue is simply that gay men use anal sex and/or are more oral oriented and prostate cancer treatments all can have some kind of effects on this situation. I could understand the desire to see a doctor who would be more aware and comfortable discussing treatment, side effects, and method of reducing after effects of it. I agree that we should try for the best doctor who we can relate to and trust. Probably in the OP's case, he wants one who is aware of, accepting of and willing to treat the whole man in addition to being the best at what he or she does. It's his decision if he prefers comfort and trust over the best available. As such, it's not our place to question or disregard his concerns and needs.

In other words, refer to Rule 3: Respect other members' opinions regarding treatment decisions. Decisions about health and well-being are highly personal choices. We should respect all points of view. Flaming will not be tolerated.

That said, it would seem that a city the size of Boston would have a vibrant and thriving LGBT community that could offer advice and info.
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davidg
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Posted 6/15/2014 4:49 PM (GMT -8)
there was no flaming here whatsoever outside of some side remarks I received.

Oral and nal sex is not exclusive to the homosexual community, not by a long shot. I don't think that's the issue.

I'm genuinely interested about the supposed issue and would like to learn more about it from someone who actually knows what it is. I'm interested in it from an academic perspective.

Reading between the lines, I think it has to do with the social status of gay men within the gay community and how this is potentially conditioned by the potential to run into the two main side effects that sometimes accompany treatment. That or the perception of it. Like Compiler said, I am genuinely interested in hearing about this from the original poster or from someone who actually knows about this so I can perhaps give it the thought it deserves.

Also, don't think anyone is telling the OP what to do. But this is a peer to peer support group and just as we tell everyone to explore their options, get educated about PCa, we also always stress that employing the services of a practitioner who is highly skilled is a critical part of the decision process. I think expressing that belief is support.
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kukukajoo
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Posted 6/15/2014 5:02 PM (GMT -8)
I deleted my posts as they did nothing to answer any of this person's concerns.

I took the time to look up some of this and have found this information that may be eye opening to some, helpful to others.

http://prostatecanceruk.org/information/living-with-prostate-cancer/gay-and-bisexual-men

http://www.cancer-network.org/cancer_information/gay_men_and_cancer/

http://malecare.org/a-gay-mans-guide-to-prostate-cancer/

This was surprising (and led me to believe possibly they are at risk of being diagnosed at a later stage):
http://www.cancer-network.org/media/pdf/Gay_And_Bisexual_African-American_Men_Have_The_Lowest_Use_Of_Prostate_Testing.pdf

A book "Gay Men's Guide to Prostate Cancer"
http://www.amazon.com/Prostate-Journal-Psychotherapy-Monographic-Separates/dp/1560235527

http://malecare.org/gay-prostate-cancer-and-doctors/

Malecare.org has many topics regarding gay men and prostate cancer on their links on the right of the page. I will be saving these links and reading up on it to educate myself. I knew there had to be something to this....
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gunfighter
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Posted 6/15/2014 6:50 PM (GMT -8)
I'm an "old man", live in the "sticks", and have never seen an advertisement from a practioner regarding compassionate treatment of gay men; I doubt that advertisements regarding this issue have appeared in Boston either.
I'm like Mel and detect something fishy here. The op could best direct his questions to LGBT members or forums if he was serious.
I guess that I'm comfortable being prejudiced although I'm not a bigot. I would never consent to an openly gay physician performing a PCa screening test on me--my choice! Finis.
Bill idea
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davidg
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Posted 6/15/2014 7:09 PM (GMT -8)
and there is the lock...

Gunfighter, not me. I don't care what the sexual orientation of anyone besides my wife is. I think that's the entire point of what Mel is arguing, in fact. We want skill in these situations, nothing else matters.
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compiler
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Posted 6/15/2014 7:20 PM (GMT -8)
Unless the OP gives more details, I'm not sure we can add anything.

 

Mel
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142
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Posted 6/15/2014 7:32 PM (GMT -8)
Mel,

You are correct. There is little or nothing to add here.

The OP has not indicated that he is even a PCa patient or caregiver.

Nothing to add, nothing to post. If there are concerns about the thread, email me.

Davidg,
Yes, I locked it, and may do so again. I agree, I don't care who is working on me, so long as they are the best I can afford.

All,

Shall we leave this dormant until we get info from the OP? Yes.
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tatt2man
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Posted 6/16/2014 3:32 AM (GMT -8)
As an openly gay man I have dealt with straight doctors , gay doctors and gay-friendly doctors .

As a gay man with PCa , I can say (in generic terms for public postings) that gay men have a different relationship with their prostate - what it does for sexual arousal - the sexual act (with partner and by self).
The loss of the prostate affects gay men differently.

Even in this day and age it can be difficult to discuss certain matters, hence the search for a gay or gay-friendly doctor.
I got more support and information from my gay GP Doc and his associates than from my straight Urologist Surgeon - who's response to ED and change in penis length, etc was "give it time - see me in 6 months...."

I recommend that he googles the gay men's health clinic in Boston and chat with them to help him find a suitable doctor for his needs.

Best Wishes,

Bronson and Steve
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compiler
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Posted 6/16/2014 5:49 AM (GMT -8)
Thanks Bronson.

 

That was informative.

 

Mel
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davidg
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Posted 6/16/2014 6:47 AM (GMT -8)
Thanks Bronson.

Although you probably already know or imagined, plenty of heterosexual guys like the same stuff. I first heard of this in college when one of my suite mates, the lacrosse team captain, woke up and told the rest of us what his girlfriend did to him the night before.

There was a silly, albeit somewhat funny movie in the 90s called "Road Trip" in which they actually showed a whole scene of a heterosexual man having a very intense climax when he received a prostate "massage".

I appreciate what you wrote above but wonder if your average urologist/oncologist couldn't handle discussing that openly. After all they tend to be very matter of fact, scientific about these things. I suppose one could find someone with socially unacceptable and backwards views, but one could always fire them.

Touchy and delicate subject for sure. Hopefully less and less of an issue as time goes by. As with all else, I suspect that will be the case.

I'd still say the best "mechanic" is the way to go all things considered though when it actually comes to getting treatment.
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Tudpock18
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Posted 6/16/2014 11:10 AM (GMT -8)

gunfighter said...

I guess that I'm comfortable being prejudiced although I'm not a bigot. I would never consent to an openly gay physician performing a PCa screening test on me--my choice! Finis.
Bill idea

I will admit that I was one of the ones who encouraged 142 to reopen this thread. I still don't know if it was "fishy" or if the OP isn't comfortable with the direction of the thread or whatever, but obviously the OP has not returned...perhaps because there were no answers to his original question.

In any case, I have been content to let this thread die off to the back pages but I just cannot in good conscience let the above quote from Gunfighter/Bill stand w/o comment. Bill, I have a lot of respect for you but I must say that this comment is, IMHO, homophobic and inappropriate. Can you imagine a black person hearing that you would never consent to a black physician or a Vietnam vet hearing that you would never consent to a Vietnam vet physician because they are all baby killers? One can only imagine our gay members and lurkers reading your unchallenged post and wondering about your bias and that of our forum members.

In any case, if you would care to delete or reword your comments I would be happy to delete this post -- but I just could not let your words stand w/o comment.

Jim
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clocknut
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Posted 6/16/2014 12:34 PM (GMT -8)
Tudpock, although I don't agree at all with Gunfighter's remark that you just quoted, I prefer to simply acknowledge his right to express his feelings on the matter. Are his feelings really "hateful," or simply a matter of personal preference, much like the preference expressed by the OP? You mention Black physicians. Clearly, there are African-Americans who prefer to go to physicians of their own race and avoid Caucasian doctors, women who prefer a woman OB/GYN and avoid male physicians, older people who don't like younger doctors, and so forth. I may not understand those feelings, but I don't think they are necessarily based on "hate."

I don't like the way some people think, but I would generally not presume to tell them how they must think and what they can and cannot say. Those of us who know Gunfighter through his participation here know that he isn't a man who lives a life of hating others. In any case, calling his remark one of the most hateful comments ever on this forum seems over the top and very unfair.

Post Edited (clocknut) : 6/16/2014 3:12:53 PM (GMT-6)

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142
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Posted 6/16/2014 12:42 PM (GMT -8)
Clock,

I think you meant to address that to Tud?
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Tudpock18
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Posts : 5433
Posted 6/16/2014 1:11 PM (GMT -8)
Clock, it was me not 142 who made the comments. I fully acknowledge Gunfighter's right to express those feelings. I felt they were homophobic and far different from a female expressing preference for a female ob/gyn. I call 'em like I see 'em and that's the way I see it. I also fully respect your difference of opinion but if you want to support his comments simply as a matter of preference then we will just have to agree to disagree.

Jim
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clocknut
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Posted 6/16/2014 1:21 PM (GMT -8)
I corrected my previous comment so that it's addressed to Tudpock (Jim) rather than 142.

I probably should have just let Gunfighter speak for himself, but that phrase about being the most hateful comment really caught my attention. Certainly there's some kind of emotion to be associated with his remark, but I'm not sure that "hate" is the one. In fact, I'm pretty sure it isn't.
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compiler
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Posts : 7710
Posted 6/16/2014 1:25 PM (GMT -8)
I give the guy credit for expressing his honest viewpoint. I don't have to agree with it.

 

Is it homophobic? Yes.

 

Is it "nice"? No.

 

The most hateful things yet posted on HW??? Well...HW is a very loving place. But, c'mon. That might be a tad over the top.

 

Again, I give him lots of credit for expressing his view, although it is a distasteful one!

 

 

 

My viewpoint: when it comes to my health, in general and especially when dealing with such a major life-threatening illness, I don't even think about a medicos sexual orientation, color, or gender. In my PC situation, I've tried to search for the very best practitioners.

 

In terms of who I want to associate with, let's just say there are some areas/neighborhoods that I would totally avoid (high crime).

 

Mel
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davidg
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Posted 6/16/2014 1:34 PM (GMT -8)
Gunfighter has been in a brutal war. I would ask Gunfighter if he was stuck in a foxhole, surrounded by the enemy, if he would really give a rat's ass if his brother in the foxhole with him was heterosexual or homosexual. Something tells me he wouldn't care in that circumstance.

I liken dealing with PCa as a war. You see where i'm going here.
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An38
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Posted 6/16/2014 1:50 PM (GMT -8)
This thread makes me uncomfortable. The original post does not.

Gunfighter's honest view on his prejudice does as do the people supporting his views on being honest.

David, your argument about the foxhole is limited - what you are saying is that prejudice has no place when there is a life threatening situation. I would like to believe that prejudice has no place in other less life threatening kinds of daily encounters either. Of course, going to a high crime area is an issue of personal risk. But if the comment on high crime areas actually is a coded comment on race that makes me uncomfortable.

I have posted here for years and this this aspect of this thread does not seem right to me.
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Tudpock18
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Posted 6/16/2014 1:54 PM (GMT -8)
Since "hate" is such a highly charged word...perhaps it was a bit over the top. I have edited that to "homophobic and inappropriate" (IMHO). I still don't like his post or his attitude on the subject but perhaps my edited remarks will allow my point to be made in a better manner.

In any case, I just won't sit still and ignore prejudiced racial, religious, gender or sexual orientation comments to go without comment...

Jim
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davidg
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Posted 6/16/2014 2:05 PM (GMT -8)
An

Point taken, but the intent to use one simple example Gunfighter could relate to on a practical level. Not looking to rehabilitate him.
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Tall Allen
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Posted 6/16/2014 2:57 PM (GMT -8)
I give gunfighter no credit for being honest about his bigotry. Bigotry is something to be ashamed of, not paraded openly. I will not in the future respond to his postings or emails since he obviously doesn't want the assistance of my kind.

I am so saddened by the lack of sympathy expressed towards the OP by people who have no right to a contrary opinion unless they have walked a mile in his shoes. If one can't be supportive, at least one can remain silent and have some humility about issues beyond one's experience.

The issues brought up in my gay PC support group have some overlap, but in many areas are very different than in my straight group. I'm sorry the OP and perhaps others may have been frightened off by the unsupportive attitude of some.

- Allen
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tatt2man
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Posted 6/16/2014 3:49 PM (GMT -8)
I feel that the main point has been missed by many of the posters...maybe if i rephrase the original poster's question as:

"How do I find an urologist in the Boston area that I can be comfortable talking to about PCa about intimate things? I am a gay man."

That would be my approach to this matter... I have had private email messages in the past about being gay with PCa and the changes in your life due this disease and the various treatments and side effects. If any one wants to write to me via email ..please do.

Take care

Bronson
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clocknut
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Posted 6/16/2014 4:15 PM (GMT -8)
Bronson, I always admire your even-tempered, thoughtful responses. I'll assume you're correct in your re-phrasing of the original post. I've been puzzled since the first time I saw it because of the heavy editing and "offensive links removed" comments that now appear there.

Still, even as a heterosexual male, I have found many "intimate things" that have needed discussion with my uro-surgeon. I have no idea what his sexual orientation is. If he's a gay man, I still expect him to provide knowledgeable answers. If he's heterosexual, same thing. He's a stranger to me except for those half hour sessions in his office and for the four hours he spent re-arranging my reproductive system. He did good work, and I couldn't care less what he does in p:his private hours.

Although I'm not gay, I share a common anatomy with those who are, so I guess I'm just naïve when I say, in all truth, that I can't understand where prostate cancer treatment becomes an issue of gay vs. straight. So, I'll just pass on that.

But, I'm upset to see words like "bigotry," "prejudice," "hate," and similar terms being tossed around here on HW. I'm also disturbed to see people now promising to no longer communicate with their HW brethren based on one remark which should be weighed in the context of dozens of caring comments. I challenge anyone here to declare that they are without prejudice in some area of life. My concern is whether they allow those prejudices to cross over into actions that are hurtful. I guess it could be argued that refusing to do business with someone because of a prejudice crosses that line, but that gets into issues so complicated that the discussion would require its own forum.

I think the Mods would do us all a favor by locking this thread, or by deleting it all the way back to he original comment. Just my opinion.

Post Edited (clocknut) : 6/16/2014 7:40:52 PM (GMT-6)

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davidg
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Posted 6/16/2014 5:35 PM (GMT -8)
i think seeking support, emotional and/or practical for anyone is one thing, but selecting a "mechanic" is quite another.

I don;t think anyone here suggested not seeking support from professionals who might share your lifestyle/beliefs/affiliations or whatever. But at the end of the day, that person would tell you to seek out the best mechanic regardless of what form of treatment or surveillance you go for. That is all some here, including me, were suggesting.

Ultimately I believe that the goal should be to expect and trust that all professionals are sensitive to all our needs no matter how different they may be.
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