Hi there. Aintgottimeforthis. Don't none of us got time for this!
Sorry to hear of your situation, and by now you've surely done enough googling to know the G9 means you'll be doing something about
it. Don't fret too much over what you find in such searches. A lot of the information is old, and the survival is generally quite good. There are quite a few of us here, and most doing very well.
Here's a link to the G9 Crew thread. Welcome to the least favorite chapter of the club no one wants to join! That's intended as a gathering place for those of us facing that diagnosis. Our concerns tend to be focused on aggressive and multiple treatment options, and typically less on the side effects. This warrants throwing everything at it.
Do stay with us. There are many here with a lot of experience, and a few with a lot of knowledge. Feel free to ask, vent, rejoice, whine, ask some more. We're here for you! It's the worst at the beginning, as you try to decide what to do. At least with a G9 you don't have to dither a lot about
whether or not to do something. It's only a question of what you want to do, what's most appropriate, what spectrum of side effects you think you can best tolerate.The Gleason 9 (and 10) Crew - Welcome and how ya doin'? (Part 3, continued thread)
For better support, I'd suggest either posting on the G9 crew thread, or start your own thread. Also, put your specifics into a signature so people can give you better responses.
Bx: 6/12 pos, G9=5+4 (80%, 60%), 4+5 (2@100%, 80%, 10%), PNI+
cT3a (3T mpMRI: Bilateral EPE, NVB+, SV-, LN-)
Date PSA fPSA
9/12 4.1 15%
3/13 5.2 12% PCA3=31
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex, ended 3/16
PSA <0.1 : 8/13 - 5/16;
steadying? - 0.2-8/16, 0.5-12/16, 0.7-3/17, 0.8-5/17, 0.8-7/17