At first I tried to explain that I had mCRPC but their eyes would glaze over and I have now totally given up telling people that I have cancer. They don't want to hear about it and I don't need their rude comments. I save my sharing for the men and women on HW where I'll get some support and some answers . . . Q
I agree, Quincy. When one of my (sometimes) obvious hot flashes goes off, occasionally I get a raised eyebrow from those who don't know about
it. I just tell them, "I'm on a medication that gives me hot flashes.". Usually this leads to a light-hearted exchange about
post-menopausal women and so on, but I don't bother with the cancer discussion anymore. It's uncomfortable for most people, and it's just not useful Few people have enough context to have a constructive conversation about
Least positive comment I heard? "Prostate cancer, huh? So what, what do you need your prostate for anyway at your age?". Yeah, maybe a bit less understanding than I'd hoped....
On another topic, there's quite a contrast of reactions here to someone posting good news or positive results. Those postings are usually naturally positive outpourings of relief, and generally met with fairly "cheerleading" responses. It's helpful to new members especially, who've likely been surfing the internet and may be completely in despair. They'll see that there is a good chance of much longer life span and better outcomes than they may have thought. To consider those folks as "bragging" about
their good outcomes is attributing a pretty negative motivation that's probably not intended.
Even though some are frustrated by not having as good of an outcome, or access to similar facilities for treatment, I don't think I want to discourage positive posts either. We're here to support one another, and for the most part anything said here is generally meant to be helpful. Sometimes someone's button gets pushed and a pretty unpleasant exchange happens, but that's not real common. Oh, and of course a lot of us here are on Lupron, so our emotional systems are pretty whacked to begin with.
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex 5/1/13
Age 56: 55@Dx 4/16/13-
Bx 6/12 pos G9=5+4 (80%, 60%), 4+5 (2 at 100%, 80%, 10%), PNI+
3T MRI: Bilateral EPE, NVB+, SV-, LN-, cT3a
Date PSA fPSA
2/6/14 <0.01, T<10
8/13 <0.1 (ADT2, post-RT)
3/13 5.2 12% PCA3=31
9/12 4.1 15%