We head to pre-op this Tuesday (5/9) for my husband's HDR brachy boost at UCLA (5/23). 5 weeks of IMRT will follow soon after.
Our docs are giving us 75-80% chance at cure. Yet...everything I'm reading online seems to pretty much point at G9 PCa as a chronic condition that will require lifelong management.
Does anyone with G9 actually move forward with no recurrence? I mean...I suppose the encouraging piece is that recurrence doesn't necessarily mean the disease is totally unmanageable. I'm trying hard to focus on the current fight and not to worry about the future, but I'm struggling with that.
It's a worry, for sure. The point of G9 assessment, and the "high risk" designation, is it's at high risk for recurrence. HOWEVER, that doesn't mean it will
do so, nor at any predictable time. And thanks for posting on this thread. This kind of concern is exactly why I set this up in the first place. Those of us in this situation have some rather existential concerns! And yes, to your question, it's more likely for a G9 to become a chronic situation, but that can be managed for a very long time indeed.
All treatment studies have population distributions of outcomes. There are people out in the tails of those distributions both for better and for worse. No one, No. One. can tell any individual
what their specific outcome may be. It's all just probabilities, and those are best used to guide treatment choices. The outcome of those treatments is absolutely unknown, and unknowable, for any individual.
That uncertainty may be the hardest aspect of this journey, at least it is for me. My success with this is quite up and down, but I try to remember "I'm ok until I'm not ok". In other words, if my latest test says "ok", then that is all
I know until the next one. So, I'm ok! If the numbers go bad later, we'll deal with that then. There is simply no way to actually predict the course of any individual's disease. (Our dear forum member Todd1963 is the most prominent case of this, living a bright future he never would have expected over 10 years ago!).
Otherwise, you lose the beauty of today worrying about
the future. All we ever have is today, now, this moment. We do what we can today, to enjoy today, to prepare for tomorrow, to help shape our future, our best shot for a good future. But we don't live there. We live here. Now.
Bx: 6/12 pos, G9=5+4 (80%, 60%), 4+5 (2@100%, 80%, 10%), PNI+
cT3a (3T mpMRI: Bilateral EPE, NVB+, SV-, LN-)
Date PSA fPSA
9/12 4.1 15%
3/13 5.2 12% PCA3=31
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex, ended 3/16
Post: (age now 59)
PSA <0.1 : 8/13 - 5/16; rising - 0.2-8/16, 0.5-12/16, 0.7-3/17, TBD-5/17