From some remarks I have read today , I see the same two posters that know for a fact they are on my ignore still keep stoking the coals even though they know, that I am not seeing their posts.
However to a couple of others that bought into their thinking, going to set the record straight on something, then don't intend to ever address it again:
My PSA is still being checked on a regular basis. My dr. feels that's often enough, the actual number no longer has any bearing on treatment at this point
And when my oncologist recently consulted with both my PCP and the VA PCP, he made it clear, that he does not feel that the weight loss has anything to do remotely with my remaining PC, plain and simple.
So one can hardly say, that nothing is being done about my PC. What is being done, is what the doctor and the patient, together, feel is right for this patient. If that's not good enough for some here, too bad. You don't see me criticizing you or others for your treatments or lack of treatments, so at least keep those non-medical qualified opinions to yourself. Repeating the same stuff behind my back serves no purpose, and certainly doesn't remotely help me.
Just because I am not doing what you think I should be doing, doesn't mean my "plan" is wrong or not working.
This might not show up because of ignore list visibility issues , and this is definitely not a non-medical qualified opinion, as some of the other posters can offer, but I think I might agree with the above. Since his PSA has no bearing on treatment, and the last PSA test showed a remarkable decline of 40 points, and no scan of the many done this year alone shows any evidence of any cancer, that issue could be ruled out. When you look back, there must have been at least ten, perhaps fifteen different doctors who have looked at the case in the past year and none even considered cancer as a cause of debilitating problems. There haven't been any treatments for cancer since the radiation four, maybe five years ago. Perhaps it took awhile for it to kill the remaining cancer cells.
It's not like there was a lone doctor mishandling the case. I think in March there was a social worker who was setting up a major consult with the head of oncology, head of neurology, and head of urology in Columbia, with provided busing and over night stays if necessary, so a joint higher level panel must have also looked at the issues.
Not sure what the plan is, but quality of life is always something to consider.