Posted 10/20/2014 11:59 PM (GMT -6)
Your well wishes came a bit pre-mature to tonight's update, unfortunately.
I was doing ok most of the day, until about mid-afternoon. Then I felt that bloated and blocked up feeling already, and I have been in utter misery ever since.
I did all I could do to help myself. Drank more warm prune juice with that powdered laxative in it, drank over 70 oz. of water today to hydrate myself, took a warm shallow bath, purposely didn't eat any solid foods (didn't want to make it worse), etc.
Almost went to the ER earlier in the evening, it was tempting, but was too embarrassed, and with all the rest of my family still out in CA, there's no one here to help me or drive me if needed. I even had to do another self impacting removal job, but didn't accomplish much other than making an irritated area even more sore.
Just don't know what to do at this point. Wife won't be back to late Wednesday. Even cut way back on my pain meds to help on the constipation part, but all that did was leave me with unbearable pain from my normal chronic pain.
May call my PCP in the morning, but he's not a good one to get right in to see, usually so booked up. And I really don't want to go to ER, already feel so traumatized over this event and the additional pain its causing me. I swear, I never get a moments break, its just one problem after the next, and all of them involve even more pain and misery. It's someone else's turn, I have had enough of all of this.
Right now, wish I could have an explosive diarrhea attack (odd thing to wish for) just to feel completely cleared and cleaned out. It does make me fear something worse is going on inside me, but I am just gun shy and paranoid at the moment. Being alone isn't helping me work through this.
Just got to make it through the night somehow, and see if I have any doable options in the morning. Can't stand much more of this on top of all my other issues. And no, still not a single answer or solution coming on the weight loss. Have dropped 2-3 lbs. since Friday, sure some of it is fluid related.
Age: 61, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries