Posted 10/29/2014 6:41 AM (GMT -7)
Thank you, Chart. This is why the VA oral surgeon wants to wait 3-4 months for my gums to heal fully and properly, so that when he fits the false teeth, there should be few problems and easier alignment. I am at the point, where I don't mind the wait, as I want this done right.
Went to PT yesterday for the first time in 4 weeks. After 3 1/2 years, they moved the Oncology only Rehab to a new facility, and separated it entirely from regular PT and Rehab. The new place is beautiful, but almost twice the distance. However, I can use the Interstate to get most of the way to the new one, and actually saved 15 minutes drive compared to the old. And it eliminates at least 25 traffic lights.
I was the only patient there. Was told for sure, I am there most senior member of the club (as far as going there). I am fortunate that I still have the same therapist after 3 1/2 plus years, and no one knows my body and limitations better than she can.
They took the better quality exercise machines to the new place, which was a nice touch. The inside walking area is limited, and a bit tedious, because they don't have the long hallways that the other building offered. But parking is easier, so its a good trade off.
My insides are starting to settle down after the blockage issue of last week. Not quite as sore sitting down, but still not feeling totally back to normal. When I need to "go", I have little signal or indication, not really any natural urge, and I still find myself tensing up in advance (in fear of the former trauma), which I know isn't helping the matter. But it will take time.
Found out my weight scale at home is overstating by 2 full pounds, had my suspicions, so I actually weigh 2 pounds less than the scale says.
Eating without teeth is proving to be more difficult than we anticipated. I am sick to death of the things I can eat, and long for things that involve teeth. Smashing up or pulverizing normal foods to eat, often ends up being gross and unappealing to me. No easy answer.
At PT, they did a full body assessment on me, and it wasn't good. Based on the readings 3 months ago, I have lost 50% of my agility and strength in my arms and legs. No real surprise there. I am amazed that I still have the strength and ability that I still possess. To look at me, you wouldn't think I could lift a pound, lol. Yet the other day, due to the fact that no one was around to help me, I unloaded a box from the back of our truck that weighed 75 lbs. Not that I could do much with it once it was on the ground, my upper body/chest strength feels about the same to me.
I have cut down my use of Norco between 1/3rd and 1/2 per day (depending on pain level and mix of pain). Due to my severe weight loss, I don't feel I need all the formal level of pain meds, since the drugs are serving a much lighter body. Since I use that as break through med, my doctor has no problem with me deciding the dose, as long as I never exceed the max. daily dose he has me on, and in nearly 5 years, I have never once taken more than I should. The fentanyl patch still is the main source of my pain relief, and I or my doctor, have no reason to change the patch size. It works well, and my body well tolerates it.
My next goal this week, is to touch bases with my private PCP and the VA to find out what is the next step and/or appointment, concerning the weight loss issue. Both thought I was in a severe situation that required immediate treatment, yet weeks go by, and absolutely nothing happens.
Perhaps when I need to be wheeled off in an ambulance to the ER, or in the back of a Hearse, perhaps then, they will get off their a** and decide to do something.
Meanwhile, I continue to be, the Incredible Shrinking Man.
Age: 61, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries