Posted 10/29/2014 5:42 PM (GMT -6)
thanks, chart - dreamer - and Andrew,
yeah, was in a bit of a funk earlier today (and yesterday), so what started as an update turned into a bit of a rant/rave/out pouring (fill in the blank). as I have stated before, I can't always take it, or appear to be stronger than some perceive me to be, I am mere flesh, and my mind and body has been whittled down quite a bit the past 6 years. kind of hard to keep it all together, all of the time.
feeling a little less shook up this evening. plan is to stay on the phone with the va in the morning, until I can speak to someone in person. aside from not liking the va pcp/weight situation, they still haven't made me a new follow up appointment for the dental surgery. I had a follow up apt, but they canceled it before it happened, but never re-set it with me. typical.
it's been 4 weeks tomorrow since I had the surgery. in some ways, it seems longer, and in others, parts of it is a horrible blur of events. so glad its in the past, and those horrible broken crumbling teeth are gone forever, never to hurt or haunt me. my gums are slowly healing, but still can't bite down on them, as in attempting to eat. have to get food to the roof of my mouth, and swallow from that point, requiring a lot of water to get it down me without choking.
I have a few sore areas still. the right upper area of my mouth still feels like phamtom teeth, but of course, they are not there. must be the sockets that run close to one's nasal passages. that area is still very sore. the left jaw bone, where they did some serious cutting and work, still hurt quite a bit at times. I only ever used the extra pain meds the surgeon gave me for perhaps the first 4 days, and since then, I have only been on my regular pain meds, and as I stated above, I have chosen to cut back some of the Norco by choice. I am picking up more pain as the result (my regular chronic pain sources), but feel its something I needed to do, as I now weigh over 105 lbs less than when first prescribed the doses I am on. If I felt, or feel, I need to take more, I will have it available, if not, I will try to tough it out with less.
Didn't mean to come across so despondent earlier, but its was how I was literally feeling. As usual, I will continue forward, and as always, I do the best I can, all things considered.
I thought I saw my oncologist again early in November, but looked at the appointment, and its not till the first week of December. We will probably do another PSA test at that time. Be interesting to see if I get another unexpected drop, or if it had started upwards again, or perhaps stayed the same. While there is no proof that hyperbaric treatments can possibly assist with metastatic PC, it will be interesting to see if there was any effect. It may be a coincidence, but I only noticed, that the psoriasis on my lower left leg (which has been there for 30 plus years), is at least 90% gone. Just like that, and it falls in line with the completion of the hyperbaric treatments. Again, from my research, there is no direct tie to those treatments and psoriasis, but who knows, if it helped, it helped. Nothing has ever helped that in the past, I was so surprised to see it all but vanishing.
Hopefully a good nights sleep (still rare for me) will get me in better spirits, to take on tomorrow and the rest of the week. Thanks again to all those well wishing, and for those of you that believe in the power of prayer - I know it helps, and I have many a person praying for me, or on someone's prayer list. In the bigger picture of things, all of my ailments are out of my hands, and I can live with that knowledge.
Age: 61, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries