Fnp256 - Welcome to our little corner of the universe. You're definitely not alone. You have a serious situation on your hands there, but there is still much that can be done. Take a deep breath. If you've found us, no doubt you've also found a lot of very worrisome things about
your husband's diagnosis. Keep in mind, a lot of the statistics you'll find are based on some old studies and treatments, and the world of PCa treatment is advancing pretty quickly even for quite advanced cases.
I've added you to our Gleason 9 Crew roster, the least favorite chapter of the least favorite club a guy could join! You have the honor of being our most recent addition to the 5+4 group. Check out the G9 Crew threads, long as they are, for many people also facing a G9 diagnosis. You'll find many treatment options discussed, and you'll also find there are quite a few of us and most doing pretty well.www.healingwell.com/community/default.aspx?f=35&m=3182035&g=3182504#m3182504
Also, check out the caregivers corner thread. There are many ladies here supporting husbands that can't or won't be involved with a forum like this.www.healingwell.com/community/default.aspx?f=35&m=3009873
Stay with us, there are a lot of knowledgeable, supportive, and caring people here!
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex 5/1/13
Age 57: 55@Dx 4/16/13-
Bx 6/12 pos G9=5+4 (80%, 60%), 4+5 (2 at 100%, 80%, 10%), PNI+
3T MRI: Bilateral EPE, NVB+, SV-, LN-, cT3a
Date PSA fPSA
2/6/14 <0.01, T<10
8/13 <0.1 (ADT2, post-RT)
3/13 5.2 12% PCA3=31
9/12 4.1 15%