Posted 11/1/2014 12:36 PM (GMT -7)
At least for some people?
I'm having a bad day, a set back day. Now I realize from reading here and elsewhere that this happens, often people move quite a bit forward and then have usually temporary set backs, so it could just be one of those deals I suppose. And there is no apparent reason. But then I got to thinking: maybe there is?
So, right before I got in the shower, I remembered to do a little rehab with the VED pump. Nothing too severe, all fairly gentle, about usual. I think I did yesterday also, this is another one of those things it is easy for me to put off or forget. After a few minutes of that, I hopped in the shower. Afterwards as I am putting my pants on, ooops, a little squirt. One I did not catch quickly enough with a Kegel like I normally would. I normally use 1 pad a day, except in the mornings around the house or evenings couple of hours before bedtime, when I won't even wear one. Yes, I have to be very careful and pay attention, but usually no problems. And when I take that 1 pad off at night, it is often almost completely dry, because a lot of times I slip a folded paper towel or tissue in there and change that if it gets damp a few times a day. So after I got my pants on, I changed the tissue I had just put in the pad thinking not much about it. Within 1/2 hour it happened again, and then again, and this time while I was trying to change the tissue another little bit escaped and I got a little on my pants and the floor.
That is a lot of action for me these days, and it was accompanied by a lot of cursing. So OK, a setback, common, no big deal. Not my 1st one, and usually no apparent cause. But then I remembered I had a fairly intense Kegel work out last night. This is another thing I forget to do these days since I have started doing much better. But since I finally remembered last night I probably did a good bit more than I usually do. So now the question pops in my head: is that why I'm having a bad day?
Should I stop doing Kegels? Or maybe it just means I need to be more faithful and do them several times or more per week? But I must admit, in the early stages, no matter how many Kegels I did, it did not seem to ever make much difference at least that I could tell. From the time the catheter came out, I could hold a full bladder of urine- by holding a Kegel- until I could get to the bathroom. I just could not Kegel continuously all day to stop the urine from steadily running out once I was up or walking. And that problem seemed to just very slowly get better over the 8 months, regardless of what I did. But impossible to say I guess. Who can say I would have been doing as well if I had not done the Kegels? Maybe I would have been an even slower recovery and would be less continent than I am now?
The only thing that has me thinking this way is the timing of a lot of Kegels last night along with a pissy day today. Then again, maybe it is the VED?
I don't know, but a sling or AUS still sound mighty good to me on somedays. Although, I may not still be wet enough for a doc to agree to do it and MCare to pay for it. How wet do you have to be to qualify for a sling or AUS?
As a matter of fact, a one stop shopping deal of a penile implant along with a sling or AUS still sounds attractive to me, even if the surgery itself does not.
Any thoughts on possible negatives for the Kegels, or even the VED rehabs?
PSA 10.9 ~112013
Bx on 112013 at age 64 yrs 11 months, with 5 of 12 pos with one G9(5+4), 1 PNI, T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, but SV+, still G9 but down graded to 4+5, cut wide, but 1 tiny foci right at the edge of margin ) Pros. 106.7 gms!
Foley out 030314
PSA <.1 on 4/7
PSA <.01 on 6/11 + 8/20/14