I don't "mean" to break into the "Men's Club" but I've been lurking here for a little while. I was finally diagnosed in 1993 with stage 4 endometriosis. I had 2 botched lap surgeries that F'd my anatomy for life. I had
open abdomen hysterectomy w/removal of ovaries. This disease, though not considered "terminal", has taken my life...my identity. It has left me neutered without option of HRT- - -EVER- - -It feeds this disease.
Enough about me. That's not why I'm here. I post on the CP/DP forums, but feel a connection to you guys. I read through the forums on days when I'm feeling hopeless. I find strength in your struggles.
Purgatory...the organic cigar should increase your appetite=) I'm sure you've tried anything I could suggest...Boost, Ensure, protein drinks and Pedialite. I admire your strength and perseverance, as I've read of your most recent struggles with dental issues. I cooked for both my mom and my dad when they had their teeth extracted/dentures. I kind of know what you're dealing with "there". Forgive me if this is "idle chatter" but I cooked a lot of beans (pinto, navy etc.) for them. I had to provide Beano for obvious reasons, but the protein was life-saving. Of course, living in Dixie...there's always homemade cornbread to "smoosh" in the soup=)
You've suffered SO MUCH, as have many here. My heart aches for y'all. I've been fighting my disease for 20+ years since official diagnosis. I'm 53, but I feel like DEATH. The "treatments" have wreaked havoc on my bones and gut. I just felt compelled to tell you that in some small way, I understand. If I could reach through cyberspace, I'd fight like a tiger to get you the medical attention you NEED.
My husband has insisted for years that I should try the organic approach to pain management. I wish I had your friends, 142=)