Mel, in the other thread, Tall Allen referenced me to his support group as the poster child for the danger of bone scans.
The danger was not any excess radiation but rather a mis-diagnosis by a rural Florida imaging firm not accustomed to anything but slips and falls scans. They wrongly deemed me to have had bony mets, but not lymph node involvement.
It was not until I had the less subjective F18 sodium scan by Dr. Fabio Almeida at AZ Moilecular Imagining in Phoenix that the bony mets were negated and there was a suspicion of lymph nodes. I had the C-11 Acetate scan that confirmed I had 3 micro lymph nodes all contained in pelvic area.
The PSA threshold is normally >=2.0 for a C-11 Choline at Mayo that is covered by Insurance or for a C-11 Acetate that is $2500 out of pocket (would have been $3,000 if not done the same week as F-18).
It's highly likely the Lupron I have been taking since 3-28-13 is masking some more mets be that bony or LN, but it would take months to wean off the half-life of Lupron even after the 4-months expired. Though this would eventually cause the PSA to rise, it might also cause to mets to increase in size or quantity, a risk I was not willing to take.
My ratioale was that the SBRTwould zap the mets even if the scans could not see them.
So I was downgraded from state IV treatabel to not cureable to stage 3 potentially cureable with radiation. So that is how I came to follow Tall Allen's sage advice on SBRT and Provenge to leverage the abscopal effect
66 - DX 64 2/13 PSA 3.68 (6 mo doubling) Gleason 9 (4+5)
T1CN0M1B stage IV w. 7 of 12 cores worst ones 70% right PNI
oligometastatic at Dx 5 tumors 1 right sacro, 2 on
T4 & T9, none visible on 5-21-14 whole bodyscan
1st Lupron 4 month 3-28-13,
PSA down was 3.68, Zytiga June 2014
PSA < 0.01, T < 6 on 10/14,
Prostate shrunk from 50.4 to 15.0
Provenge in Sept & SBRT Radiation in Oct
Post Edited (LupronJim) : 12/5/2014 11:49:09 AM (GMT-7)