Tall Allen said...
Here's the question -- do you want to go for the cure (with whatever risks and SEs that entails), or do you want to manage the disease for the rest of your life (with whatever risks and SEs that entails)?
Allen, thanks very much for your input and answering my questions. I have been watching this thread carefully to confirm my initial decision. I have also been trying to decide how to share my decision with the forum and have decided to just put it out here.
I have decided to skip going for a cure. I will have to just manage the PCa as needed. Both of my parents lost their battles with Cancer at 45 and I never believed I would have a long life. Actually I am quite happy and surprised that I have made it to 55 so far. I have decided that quality of life is more important to me than quantity. I am sure at some point down the line, I may regret this decision. Hopefully not. Anyways, in a way, I am lucky to be able to make this decision because I do not have anyone in this world that depends on me. Being single and having a dating life is very important to me now. I know that some will think this is warped thinking and that is ok. If my life was different and I had obligations to loved ones, then my decision would be probably different. We all have to decide for ourselves our treatment options. I of course reserve the right to change my mind. I do not recommend that anyone make a decision about
their own care based on mine.
My hope is also that by the time I need to manage my PCa, there will be better options available.
enlarged prostate at age 25-dx'd 51;Age-55
3/2000 psa=.08,4/2002 psa = 1.4,4/2011 psa= 49.2
5/2011 Prostate Biopsy-3 of 12 cores Positive
MRI-1 nerve bundle involved
open RRP 8/5/11,home 8/6/11,cath out 8/16/11Post Op Path
71g-1 NERVE spared
Gleason upgraded 5+4=9
EPE & PNI
Zero Club until 7/14-.034,9/14-.023,1/15-.041 ED/1 pad