Hey Mel. If you do end up staying in Ann Arbor during your treatments, let me know. I live, and work, only about
30 minutes from there. It would be fun to meet up, I'm sure.
I had 50.4 Gy to my my pelvic lymph nodes, all of them, at the outset of my RT due to a nearly 40% chance of undetected LN involvement. They were identified and targeted through the CT scan for my IGRT mapping. That way they avoided as much baking of innocent bystander tissues as possible. I seem to recall they gave a 10 mm margin around the nodes due to their possible movements. No side effects from that aspect of treatment whatsoever, though it's only been 16 months since completion, and radiation can develop issues a good deal later than that.
To be fair Mel, there are a number of folks on this forum who often sound like they know more than the MDs and have the answers. I often wonder if guys from this forum go back to their respective docs and tell them what they should do based on information garnered at Healing Well... and do they do it?
Sheepguy, actually I did do something similar, but rather more cooperatively. I asked, and took, questions from the forum and presented them to the doctors for their position on them. It was generally true that the docs knew of the questions and had decent-sounding reasons for why they wanted to do what they wanted to do. I never "told them what to do", but I did appreciate having input here that helped me ask more knowledgeable questions. Great to have a bunch of folks with first hand experience to bounce the doc's plans off of, too.