This is my attempt to chronicle my experience, from the beginning, for the benefit of any new guys that show up here feeling lost and alone, and need to hear from others. I am far from the most knowledgeable guy here, in fact I'm probably not in the top 20%. But I've been through it and know what its like. I've gotten a ton out of this forum, and hope I can give it all back in turn. For those of you who know my story, this is the version that doesn't include lunatic rants - at least for now - the first 5 posts ;-).
In 2006, or 2007, don't exactly remember, my PSA was .7, I was about
58 years old, so that was great. I had it checked every year, and it started to rise, to 1.1, 1.7, and finally 2.2, at which point my urologist recommended a biopsy. He noted in my history that my dad had PC. I am a high strung, glass half empty guy, and I immediately went into panic mode. My uro was very competent, and a good caring guy. But he was a one man office, very unusual these days, and I decided if I was going to do an invasive thing like biopsy, I was going to get it done at a major teaching hospital known for is Urology Department. So I went to Columbia Presbyterian, Dr Ben Spencer. He concurred that a biopsy was called for. He also took blood for another PSA, and did so AFTER he did a DRE. THIS IS A NO NO. I asked him about
it afterwards and he said they (his group) doesn't believe it makes that big a difference. I accepted it because the Urology Group was rated #5 in the country by USNews rankings. But it still bothered me. Because I knew it was a no no based on what I learned here.
He did a 14 core biopsy, which was negative for PCa, but one core showed Hi Grade Pin, which is believed to often be a precursor to prostate cancer. He said nothing to worry about
, retest in 6 months.
The DRE before PSA test bothered me. So 6months later, when one of the other docs of that group moved over to a hospital more convenient to me, I went to see him. Aaron Katz, very well known for his work in Integrative Medicine. He did a PSA and free PSA, which came back at 2.9 and 11, I believe. He also did a PCA3, the result of which was normal (don't recall the number). He wanted to do an MRI, but my insurance company denied it. I told him I'd pay for it if he thought it was important, he said no, just come back in six months, which I did. At that point he directed me to a website, Designs for Health, to purchase two supplements - Broccoprotect, and Inflammatone. 6 MONTHS later, PSA WAS 2.7 which made me feel like it was working. But 6 months after that, PSA was 3.1
At that point, I asked him..."rising psa, past biopsy showed hi grade pin, father had PC. Shouldn't we be doing another biopsy? He said no, as the rate of rise did not alarm him. I was relieved and accepted his response, planning only to return for another PSA in 6 months. Big mistake. First lesson: be your own advocate.
To be continued....
Post Edited (Pratoman) : 1/16/2015 9:24:31 PM (GMT-7)