DonJ posted first on the spring GFMPH thread, so I copied one of the posts here so DonJ can have his own thread.
Paul - I am lookiing forward to meeting you. I was with Dr. Crawford for about a year and then due to advice I had read here to get a MO, I saw Dr. Flaig USC (Anshutz Cancer Ctr). He took over my treatment immediately switched me from i month Degarelix shots to 3 month Lupron shots. He also recommeded ART due to my pathology. So far so good.
Jeff - I will send you the email for our itinery. I went to a local Cajun cafe to get a copy of the menu. I think I will start eating there weekly in anticipation of GFMPH!
DX April 2013, Age 59
G9, PSA 14, 11 of 12 cores +
UCH in Aurora (Dr. Crawford URO) Degarelix July 2013 (now Lupron)
RP Oct 2013 PSA <.01 since surgery.
Final Path: High Gleason PCa > 50%, T3b EPE + multifocal > 15mm
Per Inv. Bilateral inv of seminal vesicles, Lymph inv mf, + base, + bilateral-posterior margins >10 mm
MO Dr. Flaig UCH
ART Nov2014-Dec 2014 33 sessions 62GY
Don, we'll be at the spring gathering too, and would enjoy meeting you. It's a fun time with a lot of healthy camaraderie!
Welcome to the forum, sorry you need to be here but glad you found us! This is a great group of guys, and you can find a lot of support here. Feel free to post anything on your mind; it's likely someone here has had the same thing and may have already figured something out.
Let me also welcome you to the G9 Crew, the suckiest chapter of the suckiest club no one would ever want to join! I'll enter your name on the roster there. It appears you already know about
the G9 thread. It's meant as a more focused support group for some of the more specific concerns those with a G9 diagnosis may face. You may have already noticed, but there are quite a few folks on that thread (and its predecessor), and most are doing rather well.www.healingwell.com/community/default.aspx?f=35&m=3182035&g=3182504#m3182504
Stay with us, brother! We're here for you.
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex 5/1/13
Age 57: 55@Dx 4/16/13-
Bx 6/12 pos G9=5+4 (80%, 60%), 4+5 (2 at 100%, 80%, 10%), PNI+
3T MRI: Bilateral EPE, NVB+, SV-, LN-, cT3a
Date PSA fPSA
2/6/14 <0.01, T<10
8/13 <0.1 (ADT2, post-RT)
3/13 5.2 12% PCA3=31
9/12 4.1 15%
Post Edited (Redwing57) : 2/3/2015 5:28:29 AM (GMT-7)