@Worried Guy - yeah for some reason tonight it seems like my kidneys are working overtime. Something just feels different since I woke up wet. I've been going to pee like every half hour, and really needing to.
I've been trying to wean myself off caffeine . After the surgery for a couple of weeks it was easy. Because I didn't give a crap about anything the way I felt. But then, as things improved I went back to cafinated coffee. Definitely makes for more leaking, so back to decaf. But I feel like crap, so I end up sometimes making the second cup regular, not decaf. Maybe that has something to do with it. Still, only one cup, and it was 12 hours ago.
I changed my diet today, n bread, less fat, maybe that's part of it.
Ok sorry, I'm rambling. I'm discouraged but I need to just suck it up, and be patient
@Chris - thanks, it's encouraging to hear this is part of the process
@Bensam - thanks for the reminder and the coaching.
@logos - thanks for not beating up on me.
And to think, I thought I was out of the woods, and actually had the balls to use the word "trifecta" . Serves me right.
Prato my Bro, you are ridiculously early and I have been so jealous of you and still am.
Though my path back to mostly normal had been so much slower than yours, still along the way I have had those mostly minor set backs.
As far a peeing a lot(high volume of urine) goes, probably has nothing to do with incontinence, it is just a large variation in the amount of urine you are producing. It might be a PITA, but it is not related to your lack of continence. Although, it could be related to the healing of your bladder and anastomosis from surgical trauma and a week or two of indwelling catheter, which might be better or worse one day to another. That is the tricky thing about
this crap: one day is better than the next day, back and forth. From early on I have had either sleep the entire night(for the 1st time in 20+ years) and pee a whole lot the next morning- or maybe not all that much urine even then. OR...... be up 3 times during the night to pee and pee a WHOLE bunch each time. I have often been amazed to see how much urine I produce some nights. But obviously, me producing a gallon of urine has nothing to do with how continent I am. If you make a bunch of urine and fill your bladder up, then it's time to pee even if you are 18 years old.
As for peeing fast but not for long, I have been that way since the cath came out. I have never been able to figure out if I am fully emptying or my sphincter is clamping off before that can happen. Or, if my bladder is not as big as it was pre-surgery, hence it's over with extra fast. Who knows? But if I do really have a full bladder, I'm like a fire hose rather than that slow stream and frequent peeing I used to have pre-surgery.
I have been dry when laying(and mostly sitting) down since the cath came out. But unlike you, if I was up, I was pissing my self anytime I was up unless I was forcefully Kegeling, and you can only do that for so long. Still, it was such a blessing to be dry while sleeping, and rid of pads while sleeping from early on. But even that blessing has not been absolutely perfect. I remember after about
3 weeks, I got up one morning and was shocked to find a good sized wet area on my under pants. I did not even know it happened. That might be the only time that has happened, but there have been a very few times when I have moved too quickly to turn over or get up when I had to do an emergency fast Kegel to keep the sudden increase in abdominal pressure, combined with a full bladder, from causing an accident. I guess you have to get where you can Kegel even in your sleep, and I think that does happen.
And here is a warning for you in the unlikely case you have similar hobbies to me: watch out for hammocks! There is something like magic about
their ability to force urine out. I love to hike in the woods, and I often pack a hammock and after a few miles of hiking I will hang a hammock up and take a nice nap in the woods before hiking back out. When I was 1st hiking on the trails, I found out they were MUCH harder on my control than walking around the neighborhood. But to make it worse, as soon as I tried to lay down in, move around in or get out of the hammock I found it was a major battle to keep from totally pissing myself, even though I was nice and dry while in my bed. I was laying down in both cases, but one was almost always totally dry, another: WATCH OUT! Don't know why. But since then I have noticed certain movements in the bed can also be a risk. Picture a full bladder combined with something like doing a situp in bed, or just getting up real fast. That is a big increase in intra-abdominal pressure, on top of a full bladder from not peeing all night: definitely risky and maybe requiring a very quick and strong Kegel.
And don't forget sneaky pain free bladder (or whatever) spasms. I think I have always underestimated the contribution of spasms, and blamed too much on weak pelvic/sphincter muscles. And it might take our bladders, at least for a lot of us, a long time to heal 100% after all that trauma( I am 1 year out). And even lacking a small % of healing can be a problem. It actually feels more like it is in my penis, and it is involuntarily trying to squeeze urine out, and it takes a good Kegel to stop it. And usually, once it starts, it is going to repeat until it has it's way. It is most likely to happen when getting up from a tall seat in the kitchen(used to be getting up period) A few or maybe 30 seconds later it will hit and requires a quick response. Sometime on a 2 mile walk, I will realize I have been briskly walking with no conscious Kegeling, completely relaxed, and get home with only a couple of drops or even DRY. Other times, at about
1 mile or so, the spasms will start, and I can stop them but they will keep recurring, and unless I am somewhere that I can whip it out and let it go, I might get home with a pretty good sized wet spot. All from spasms.
Hang in there Bro, you should expect some days better than others, and I know waking up that wet is discouraging and scary, but even with that you are way ahead of the curve. However good you are doing now, most likely in 3 or 6 months you will be much improved over that, and even better in a year.
Post Edited (BillyBob@388) : 2/23/2015 9:58:20 PM (GMT-7)