Mary, i echo hrpnstuf, i had my GLeason 8 downgraded to a GLeason 6 by Epstein. I also called his office during regular business hours. His assistant put me through to him and he was very gracious with his time. I also conversed with him via email after that.
My GLeason was the upstaged to a 7 (3+4) after surgery, when they got to look at the whole Prostate. It's not bad, it's low intermediate risk. Could be worse.
Age 64 (in 2014), Father had PCa
PSA Feb 2006 - Nov 2014, PSA rose from .7 to 4.3
Nov 2012 - Biopsy - 14 cores all negative for PCa, 1 showed Hi Grade PIN
Nov 2014 BX 3 of 12 cores positive original pathology G6 10%, G6 20%,
G8 (3+5), 70%. Johns Hopkins second opinion, G3+5=8 downgraded to 3+3=6 @80%
Bone scan and CT Scan negative
Surgery with Dr Ash Tewari Jan 6, 2015
Post surgical pathology, stage T2c, bilateral disease, upstaged to G7(3+4)
5% of Prostate involved in Tumor
Organ confined, negative Margins, negative SV, negative lymph nodes (9) PNI positive
PSA 2/15 <.02
My story: www.healingwell.com/community/default.aspx?f=35&m=3297053&p=1