Saw VA doctor on Monday.
Good news on kidneys (at least it seems unless I get another phone call) Ultra Sound picked up a benign tumor, pretty good size, in right kidney. Waiting for results of final blood work to verify that it truly is benign.
MRI picked up place in eye socket, but they couldn't determine what it is. On 1-3 month waiting list for VA eye doctor (already been on list 1 month) to give a 2nd opinion. Depending what he finds, may send me to VA Eye Surgeon, which will entail another long wait. And this is with me being a Tier 1 Patient with Urgent needs.
CT picked up place in cheek, couldn't determine what it is. On waiting list to see ENT doctor in Columbia, may do a needle biopsy to see what mass is composed of. My greatest fear is return of Porocarcinoma, this new growth is less than 2" away from last episode.
Weight loss/total loss of appetite - still don't have a clue or even a good suggestion at this point.
Dizziness, smell hallucinations, weakness, numbing, etc - VA sending me for a full panel consultation with Neurology Department in Columbia - not sure of waiting time on that one.
Brain MRI - showed large area of atrophy - much more advanced for my age then expected, in area of brain controlling memory - hope that's not a bad omen for the future with Alzheimer's.
EEG - Normal
Great that all of this, and tests are free, but progress is painfully slow. Least scans/tests prove what I have been saying exists. Losing faith in MRI's, for all they cost, amazed at what they can't pick up or determine clearly.
So no major bad news, some good news, but still a lot of unknowns in there, thus I continue forward.
Ex-boss says when his settlement is settled, he's footing the bill to send met to John Hopkins's for a week for a full blown study of all my issues including the PC. He's dead serious about this.
All this stuff the past few weeks has left me drained, physically and emotionally. Honestly tired of fighting evyerthing all of the time, really starting to tax me too much. There's seems to be no end to it. By the time these doctor's figure out everything that is wrong, I will probably be dead of something anyway, so it almost seems pointless to keep trying. Life has become a blur to me the past 6 1/2 years, and its passing me by. Starting to feel like the invisible man when I am in a crowd or walking around downtown during business days. Lost all sense of relevancy to the real world. Doctor's keep telling me to do less, to rest more, etc., but feel I already am doing so little, can't just lie around and do nothing. And when I do more, I have to pay for it with additional pain and fatigue, so its a two-edged sword. Don't mind me, mostly muttering to myself at this point.
I am just thankful that many of you, have been treated, have done well, and are able to move on and enjoy your lives for the most part. Glad to know that some of you are winning this battle, that is a good thing.