I traveled cross country, 2465 miles from rural Florida to UCLA to have the first cousin of Cyberknife, SBRT, and no regrets. Mileage is not that pertinent since I went by plane.
There are some foundations that will pay say $5,000 to help offset your travel and living expenses and would have paid any portion not covered by Medicare and AARP Medicare Supplement Plan F.
Check out Patient Access Network and ZERO (www.PANfoundation.org
) 1-888-316-PANF who paid $5,000 with two $2500 grants to offset some of my Provenge travel expenses and also pays for my Zytiga.
There is another foundation with a similar name PatientAdvocate.org
who considers grants by phone on first Monday of every month. They paid another $1,000 worth of travel expenses.
Yes, well worth the travel.
66 - DX 64 2/13 PSA 3.68 (6 mo doubling) Gleason 9 (4+5)
T1CN0M1B stage IV w. 7 of 12 cores worst ones 70% right PNI
oligometastatic at Dx 5 tumors 1 right sacro, 2 on
T4 & T9, none visible on 5-21-14 whole bodyscan
1st Lupron 4 month 3-28-13,
PSA down was 3.68, Zytiga June 2014
PSA < 0.01, T < 6 on 10/14,
Prostate shrunk from 50.4 to 15.0
Provenge in Sept & SBRT Radiation in Oct