Thanks Mel, Susan and everyone. He was shipped up to palliative, after his cross-match, purportedly for blood. This was this morning. I just got in and he has STILL NOT HAD ANY. The palliative doctor had "gone home" when I enquired. Also, the home care team person did not call (told on Monday "latest Thursday") so I tried calling them again and the "leader" said, "Oh, didn't anyone call yet?" Unbelievable.
All the kids showed up with wives, husbands and grandkids. Don was joking away because the people in the beds in his room were all snoring in sync. No one came to see him after the nurse made her notes. No one in five hours. I told her that I would be taking him home tomorrow and she said, "Well you have to get the doctor's PERMISSION for that. I said, "Excuse me, but if I want to bring my husband home, I bring him home." He was told he would be looked after and checked for two days. I wonder when that will start. Emerge refused to take him for blood. So he is feeling really weak. I hated leaving him in that awful place but he needs blood. They will probably say he doesn't, that it is disease progression, and just leave it at that. I am glad I cancelled our trip Monday. Tonight I am raging at the world. I know exactly the garbage that Sue went through - and the garbage that led to our husbands' disease progressing as far as it did before Dx.
ETA Mel...no, it isn't but the terms are often used interchangeably. Hospice is when they think you have less than three months. Palliative is sometimes the same but can include people with a longer prognosis and those for whom no cure is seen as being possible, so they just get whatever meds they need for palliative reasons.
Post Edited (Moonlitnight) : 11/19/2015 11:19:57 PM (GMT-7)