Still alive and kicking.
Had the first fitting for my dentures a few weeks back, good news. Bad news, instead of getting "teeth" by May, as told over 6 months ago, the VA oral surgeon wants another 3 months of healing time for my gums and jaw bones, bad news. The VA dentist in Greenville that I saw, read from the surgeon's notes, and he stated that my case was a 1 out of 1,000 case. In his 40 plus years of practice, said it was the worse radiation damage he had ever seen. He wants to proceed with extreme caution.
Due to high risk of secondary cancer from the radiation, especially, he noted, brain cancers, he is ordering full 360 dental x-ray's every 6 months and a full brain MRI every year from this point on.
Will be seeing the ENT doctor real soon about the lump in my cheek, still waiting for appointment with the eye doctor to give second opinion on lump in eye socket. Nothing more can be done to speed it up via the VA.
No change on weight issue. After stabilizing for a couple of weeks, back on the downward slide again. No one has an answer at this point. Got them all baffled. When I have recently tried forced calories, all it does is increase the "burn" rate. Seems like everything in my body works with reverse logic.
Still faithfully going to PT, been there for 4 years now, a record at that facility. No forward progress ever, but they still feel they are helping me from slipping back even more. I agree. My doctors agree. This week, fatigue was so extreme, could barely finish 1/2 of my normal limited routine. But I do the best I can.
Hope everyone is doing well. When I get a chance, will spend a little time reading some of the more recent posts, to give a word of encouragement to those in need, or advice, if any of my limited knowledge is still useful.
Saw where someone was implying a contradiction in test results on my kidneys. I agree it seems that way. VA doctor's explanation was the vast difference one can get going to different scan centers and using different machines. Their scan didn't show the same stuff the 3-D one had previously. Seems odd to me, hard to know which one to believe (as the patient - me).
My oncologist refuses to accept scans from the local hospital I live next to, as he said even their basic x-ray's are inferior quality.
Will check back when there's something useful to post. Just hanging in there.