Posted 5/5/2015 3:26 PM (GMT -7)
Thank you so much for your messages of support. It can be very hard, having no one to talk to. Friends will ask "how is your Dad?" but it can be very hard to give a brief summary, so you end up saying virtually nothing at all - "He's ok, not too bad", that sort of thing, when all you want to do is have a discussion with someone who knows exactly what you are talking about and understands the ups and downs that this disease brings.
Dad isn't to have a blood transfusion until his haemaglobin goes below 80, which probably won't be long now really anyway. It dropped from 99 to 84 in 27 days.
He visited Radiology today, he won't be having radiotherapy. The specialist said there was no point whilst the Xtandi was working, as it would likely be shrinking the tumour, but that once it stopped working, they would rethink then.
Gastro team tomorrow, which I think will be a pointless visit, purely because they want to discuss a colonoscopy and Dad doesn't want it. He's doesn't feel well enough to go through the preparation, and it's unlike him to admit that he's 'not well', he usually says 'I'm fine, really good' when you ask him how he is.
I think he is just utterly fed up quite honestly, fed up of telling the same story over and over to different people every day, whether it doctors, nurses, or insurance companies, banks etc etc.
Thank you again for your kind words - it really means a lot to me
Dad (my Hero)
Feb 2004, Dx age 51
8/8 biopsies positive for PC, slight local spread, no Mets.
Gleason 7 (4/3)
July 2004 - 30 x RT
Casodex & Zolodex
Sept 2013 - MRI, CT, Bone scans - no Mets
June 2014 - TURP
Dec 2014 - Cauterisation of Prostate bed
Feb 2015 - PSA 126, scans show Mets in all bones ('a general uptake' with hot spots), lymph, lung, skull base.
Feb 15 - Xtandi