I looked at a couple of Dr. Kwon's videos a few years ago and this is builds upon and is consistent with what I saw before. Now that I have been through the traditionally "curative" treatments -- RP and SRT and am now once again seeing a rising PSA -- I'm once again thinking about
what comes next. What I see here is encouraging. The question I still ask is how representative are the patients discussed here. Are these outliers -- a few cases among thousands? (He says his clinic sees 40 patients per day) or are they the tip of an much larger iceberg if we were all only hip to the potential of high resolution scans and targeted treatment? I don't pretend to know the answer, but I hope Dr. Kwon is on the trail of something that could actually benefit many of us.
I will probably have choices to make in the months or next couple of years ahead. One of those may be a trip to Rochester or some place similar. In this video Dr. Kwon shows identifiable hot spots that reveal themselves at a PSA of less than 0.9 (if I am remembering correctly). My next test (in late July) will tell me if I am still above or below 0.1. Both my uro and my RO are suggesting putting me on Casodex when I hit 0.5 (my uro's statement is he'd rather go after it "before it gets to the bone"). Do I want to go there? Would I rather see if this warrants a trip to Mayo or someplace similar first? I would also want to consult with a medical oncologist before making any decision.
And then, to be crass, there are the financial considerations. Will my Medicare Advantage plan cover a trip to Mayo or equivalent? When, or at what point, should I ask the VA to acknowledge that my remission is over (I'm an Agent Orange Vietnam veteran) and boost my disability rating? Too many unknowns right now. But so far 3 out of 3 of my doctors (primary care, uro, and RO) are not happy with my last three test results and say remission is over.
I still wonder if the zapping of identifiable hot spots really extends life. Is there still an underlying micrometastic pathology that will still be producing new hot spots? Does zapping hot spots actually extend life or just add medical procedures to the same lifespan?
-DX March 2002-PSA 9.4, 5 of 10 cores positive - 30-50%.
-RP April 2002. PT3B N0 MX Gleason=7 (3+4), 75% left lobe; small focus right lobe.
-Post-surgery PSA low of 0.01; slow rise to 0.4 (Aug 2009).
-SRT Jan/Feb 2010. Enlarged lymph node near prostate bed targeted. Casodex 3 months during SRT -PSA 0.00 2010 through Apr 2014; 0.02 Oct 2014; 0.05 Jan 2015; 0.1 Apr 2015
Post Edited (Bohemond) : 6/25/2015 8:21:45 PM (GMT-6)