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Update 6-24: Post face surgery

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Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 6/24/2015 6:45 PM (GMT -8)
Wow, past three days a blur for me. Found out my face surgery was scheduled for 0630 on Tuesday. So we drove Monday evening to Columbia and stayed at the downtown Marriot. In my world, being somewhere that early is unthinkable, as I am not usually asleep till well after 4 AM.

They have 6 operating rooms, and I was one of the six in the first slot. Was well impressed with how well staffed they were in the OR prep and OR areas. Everyone polite and very professional with their various parts.

Just prior to being injected with the "happy juice", they brought in the entire OR team assigned to me, there were 7 people in front of me.

I vaguely remember being pushed into the OR, and being asked to slide over onto the operating table. Last thing I remember, was oxygen tubes gently pushing into my nose. Next blink of my eyes, was being asked to wake up in recovery. I actually love being put under, I find it kind of soothing. Yes, I am nuts.

Well, my surgeon's hunch was correct. There was a large odd growth/tumor that was growing and complete wrapped around a major artery in my face. For whatever reason my own long term oncologist failed to find it important and basically dismissed my concern. The VA's ENT team was right on top of it.

Instead of cutting vertical as I assumed, as the growth was vertical, he went sideways, and made an incision perhaps 2" long at most. He told my wife he believe he got it all, and that whatever it was/is, it didn't belong there.

It's having pathology at the local level first, and unless he's totally convinced its benign, he intends to send it to the VA's national pathology lab, didn't say where that was. So it may be 10 days or more before I get results.

Instead of conventional stitching, he used these newer super glues, said it would reduce scarring. Right now, its kind of black/blue and swollen, hurt about a 3 to 4, not real severe.

When I got back to the VA next Monday, he will look at it to see how its healing. Spent about an hour or so in recovery. He had estimated 30-40 minutes surgery time, but it took a bit over an hour, due to how it was wrapping around the artery.

We were back home before 1 PM that day. My wife drove of course, and I barely remember the 2 hour plus trip home. Rested in bed most of the rest of the day.

Just glad the VA took my concern seriously. Have no complaints about the experience, I was well taken care of by all their staff, from the surgeon down to the guy that pushed me in a wheel chair at the end.

Now I am waiting for that pathology plus the pathology from the biopsy that was down the week before on the growth on my scalp. It will be a miracle if they both come back clean from cancer. Doctors feel its unlikely, but possible. I need to dodge these two bullets.

Tomorrow, I see my urologist for the first time in over a year, I am bleeding more and more into my Urostomy bag, and its not coming from the stoma itself. And I have a deep pain in the area of my right kidney, really hoping its some advance UTI, and not some sign of kidney failure. Without a working bladder, its much harder to dx. and detect.

Always something over my head. Never an end to this "journey". Just one trial after the next. Still scheduled to pick up my finished dentures at the local VA on Friday, but surgeon said my mouth is too swollen from the surgery to consider using them. He advised waiting at least 2 more weeks.
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Almost a 10
Veteran Member
Joined : Mar 2014
Posts : 1070
Posted 6/24/2015 7:55 PM (GMT -8)
You never seem to be without a challenge. Glad that this one is behind you at least as far as the surgery is concerned. Now lets hope that it was benign. Best wishes to you for continued recovery.
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Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 6/24/2015 8:30 PM (GMT -8)
thank you
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Explorer59
Regular Member
Joined : Feb 2012
Posts : 188
Posted 6/25/2015 3:27 AM (GMT -8)
David,

I am so glad to hear the surgeon found that the growth was something he could work on and that thinks he got it all. You have my prayers for continued recovery, a favourable pathology report, and being able to get those new teeth soon.

Explorer
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beachbum50
Regular Member
Joined : Sep 2007
Posts : 302
Posted 6/25/2015 11:03 AM (GMT -8)
David,
Thank you for bringing us up to date. I'm happy you made if safely through the surgery and pray that he was able to get all of whatever it is. Stay strong and know how much we all support you.

Beachbum
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81GyGuy
Veteran Member
Joined : Oct 2012
Posts : 3548
Posted 6/25/2015 12:23 PM (GMT -8)
David -

While websurfing late the other night I came across a reference to the comedy film of a few years ago, "Groundhog Day."

You probably remember it. It's a comedy starring actor Bill Murray as a character who enters some kind of bizarre time warp or something, where every time he wakes up in the morning he relives the same day as before, same as the day before that, over and over again. There is some minor variation from day to day, but basically he's reliving the same day over and over again.

I guess the film must have been stuck in the back of my mind or something, because reading your thread just now somehow brought the idea to my mind that, from a medical perspective, you're kind of living that film. That is, it just seems like on so many days, from one day to the next, you are waking up to the same issues, and the same situations, and the same challenges. Even your surgeries, though of different kinds, might seem to you to be following a kind of repetitive pattern, with one day leading into the next same day, one surgery or treatment after another.

But there could be a positive outcome to all this. In the film Murray's character eventually finds a way to break the strange cycle, and his days and his life finally return to normal.

Could that film possibly serve as a kind of allegory for your own health situation, that while the "Groundhog Day" syndrome, so to speak, is the pattern of your life right now, nevertheless, eventually, you too will break the cycle, as happened in the film, and your own health issues may finally come to have a happy ending after all?

Perhaps this is a strange thought that I have presented, but sometimes in life, as in films, happy endings do occur, when we finally "break the cycle."

Just a thought. In the meantime, you continue to amaze us all with your ongoing fortitude and determination.

A sincere hope that this your latest treatment has been a successful one.
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Bohemond
Veteran Member
Joined : Apr 2012
Posts : 1440
Posted 6/25/2015 1:17 PM (GMT -8)
Glad to hear the procedure went well and that you got to go home the same day. It's also good to hear something positive about the VA. Crossing my fingers for a good pathology report.

Jim
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ChrisR
Veteran Member
Joined : Apr 2008
Posts : 849
Posted 6/25/2015 6:00 PM (GMT -8)
Purg.....Wish I lived close enough to you to be your friend....you are putting up with more crap then anyone I know....

wishing you catch a break and everything turns out good for you.....
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Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 6/25/2015 7:10 PM (GMT -8)
81 - just rewatched that movie recently, good but aggravating to watch

chris, thanks, that was a nice thing to say

thanks to each person.

jim - for me, I am becoming more and more pleased with my VA medical care, at least here locally in SC, quality of service has greatly improved as well as wait times. Can't complain.
==================================

Today was spent at my uro's office. They put me on a strong anti-biotic, in case an UTI is causing the bleeding into my Urostomy pouch. Tomorrow, having special kidney CT's done at St. Francis, to see if they can see anything going on with my kidneys. As if I didn't have enough on my plate. I am amazed at just how many scans of all types I have already had this year. Couldn't imagine there being any hidden secrets at this point.

Face still slowly healing, still swollen and blackened looking. VA will look at it again on Monday, then again on July 1st. Still on target to pick up my new teeth at 11 in the morning, but definitely mouth too sore to begin using them, but will at least have them.
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InTheShop
Elite Member
Joined : Jan 2012
Posts : 11468
Posted 6/26/2015 3:54 PM (GMT -8)
David,
still praying for you,
Hang in there,
Andrew
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Barbara Lee
Veteran Member
Joined : Sep 2003
Posts : 2889
Posted 6/26/2015 5:24 PM (GMT -8)
David:

(((((gentle hugs))))) I know that I've not been posting to your threads, however, I've been reading them every day. I wanted you to know that you've been in my daily prayers and on my minds a lot. I sure hate it that you're still having to go through so much with your health. Of course, I totally understand how it makes you feel and how you manage things day to day.

I've not given up on our friendship, I've been really sick and I sliding down hill. I just can't seem to even work up the energy to crawl to the chair and balance our checkbook most days. I Just wanted you to know that I'm reading the updates and following everything that's going on with you.

Hopefully, I'll start to feel better over the next few days and can start to be more active here on HW. I celebrated my 30th wedding anniversary on the 8th of June and hubby purchased a tablet for me to use at the hospital and such. It's got Skype on it and maybe we can finally have that talk we've been saying we will do.

Hang in there David, you're not alone and you're in my prayers.

Hugs,
Barbara
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Purgatory
Elite Member
Joined : Oct 2008
Posts : 25448
Posted 6/26/2015 7:23 PM (GMT -8)
Barb.

Thanks so much. Been waiting patiently for you to feel well enough to post again. Have checked back a few times on the Lupus group to see how you have been doing. So sorry you are still on your downhill slide.

Congrats on your 30th, I passed that milestone 11 years ago, lol. Glad you have a tablet. Bought my wife one about 6 months ago also.

Still not giving up on my end, and you obviously haven't either, so our deal is still in place.

Today I had the CT's done on my kidneys, to hopefully explain the bleeding in my bag and the deep pain below or near my right rib cage. Hope they can figure that out fast. Kidneys been looked at several times, and nothing shows up. My BUN blood test recently was at 34, with a top range of 20. So it was nearly double the high reading, it can indicate kidney trouble the doctor said.

Still waiting biopsy results from the growth in my cheek, and the growth on the top of my head.

Still can't gain weight. Given up on that subject, no one has a clue why I have lost half my body weight in less than 18 months time without trying. Doesn't seem to be a great concern to any of my doctors. Only good thing, my BMI is in the perfect range, even if I look like a refuge from a third world country.

Still healing from Tuesday's surgery to my face, doesn't hurt too bad. As expected, the VA couldn't give me or install my dentures this morning, due to the facial swelling. They have postponed it till July 21, so I will have to wait almost another month. It will be nearly 11 months without teeth by the time I get to wear them. I did get to see and hold the finished dentures, they look so amazingly natural. Better than my natural teeth ever looked.

Will check back on you, my dear friend, never ever give up. I won't let you.

David
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