Sue (and all) it is good that your guys can move around. I have been driving Don back and forth yesterday and we ran out of gas and I was concerned about
a work project that my clients were asking about
. Short story, he had all his treatments, then tire was flattish and we have to drive to US today to get supplements to go with the treatment. Two gas stations broken air pumps, third, "We don't help customers with that" and I couldn't figure it out so I went to reverse to the air unit again anyway and got an instant migraine when I turned my head, so Don got out and staggered painfully to the office with me driving over quickly in the car to go retrieve him.
A lovely couple with dreadlocks was standing by and the woman came running over and grabbed Don. She asked if she could help as he got back in the car and he said, " Thank you but I'm not feeling well" to which she said, "I can see that" and then "...and my wife isn't capable." ??????? I was so shocked after giving it my all, hours of research, the secret treatment, the stress, the driving, driving, that I just burst into tears like a lunatic, thereby making it look like he spoke the truth. Of course, he didn't mean it the way it came out but I just felt so useless and humiliated. Or rather my ego did. I shouldn't HAVE any ego by now with all the meditation and energy work I do so I was rather disappointed with myself.
Don looks awful and it breaks my heart. He feels better and his LDH is down to 1500 again, still way too high. I find it funny when the doctors all point out rises tp over 4000 in the LDH as "disease progression" despite the fact the rise was in less than four days, but when it falls just as fast, and I ask why, they are tight lipped. I am sure he is getting even thinner.
Oh! I forgot. Sue, we went for a very RUSHED interview for the virus vaccine. Don had a blood appointment across town. This interview was at the Cancer Agency. The doctor and nurses/interns were late so I said we have to leave. To their credit, they showed up, with few notes on Don from months ago. The doctor was VERY pleasant so we thought we may have been involved in a road accident and he was St. Peter, given the agency's deplorable track record. He mentioned two other trials, one with docetaxel (no thanks) and another with abi and another drug but the doctor didn't know what it was. I will check with Diane, who helps us with trials. He said he didn't think the vaccine trial would help much since it is only a Phase 1 and we may not get a good vaccine (they give two different ones and a mix randomly). This makes no sense since I read both vaccines were helpful. He also said they would have to find a soft tissue tumour and do a biopsy and do CT scans, which we were aware of. He didn't seem keen but kindly gave us a lot of info on the trial as well as his phone # and is having someone call us. Very pleasant man.
I have to read through all this to make a determination.
Post Edited (Moonlitnight) : 8/8/2015 12:26:24 PM (GMT-6)