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Calling all pT3 Club or "The Horse Has Left The Barn Boys"

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Calling all pT3 Club or "The Horse Has Left The Barn Boys"  
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Posted 8/27/2015 5:27 PM (GMT -7)
On my way to Lake Sands Imaging in a bit to try to find what's causing rise in PSA. The battle continues!
Bob
DOB January 1944 (now age 71)
1981: prostatitis corrected with meds.
2000-2013 BPH treated with finasteride & tamsulosin; also hypogonadism treated with androgel.
7/2008 PSA 0.6
3/2009 PSA 0.6
11/2011 PSA 2.2
8/2012 PSA 2.7
2/2013 PSA 5.5
4/2013 PSA 6.1
5/2013 PSA 6.6 (T ~700)
6/2013 trans-rectal biopsy (2 of six cores gl. 4+5=9), 10%, 40%, staged Pt1c
7/2013 bone scan negative
9/2013 ORRP (pathology gl. 4+5=9, +SVI, + .4 margin at right base, 10 Nodes negative, Staged Pt3bN0M0
11/2013 PSA 0.1
1/2014 PSA 0.2
4/2014 PSA 0.3 (T~ 350)
5/2014 3 T pelvic MRI, negative; 1st 22.5 mg. Lupron shot
6-7/2014 IMRT/IGRT 38 sessions total 68.2 gy. to prostate bed only
9/2014 2nd 22.5 mg. Lupron shot
9/2/2014 PSA <0.1 (T= 3)
12/2/2014 PSA <0.1 (T <3)
3/2/2015 PSA 0.1 (T= 328)
6/2/2015 PSA 0.4 Started on Avodart
6/17/2015 F-18 fluorodeoxyglucose CT PET scan : negative for PCa
7/8/2015 Colonoscopy: diverticulosis, radiation telangiectasias, (4 polyps benign)
7/24/2015 PSA 0.7 ( T=291)
Posted 8/27/2015 5:31 PM (GMT -7)
Better put me in...
Every minute you fish or ride,adds an hour to your life!
Age 52 Dx age 53 daVinci surgery
Biopsy 12 cores with 7 positive
Psa at surgery 49.8
RRP on 01/25/11
PT3a, Gleason 4+3=7
margin involved-Left anterior
lymph nodes clear
psa in 04/13-0.21,( 3rd rise), 35 IMRT treatments . Results were <0.1, 11-04-13(0.01). 04/01/14(0.01). 10/14(0.01). Since then, no change.
Posted 8/27/2015 6:17 PM (GMT -7)
Mac:

I guess I'm confused.

The positive node happened during an HT vacation.

Mel
Posted 8/27/2015 7:25 PM (GMT -7)
Mel,
Well then are you saying you were staged originally at pT3a with no seminal vesicle invasion at the time of your surgery and pathology report?
If so I will list you as a pT3a.

Bill from Florida cool
Posted 8/27/2015 7:38 PM (GMT -7)
Yes

Mel
Posted 8/27/2015 7:46 PM (GMT -7)
Break60 Hey Bob,

Sorry to hear of the rise. Looks like you went through this before last year. I sure hope they find out what is causing it.

I just updated the list and you have 56 brothers here in the new pT3 Club that are pulling for you.

What you are going through is everyone here's nightmare. We got your back, that is what this group is about.
Keep us informed of your progress.

Bill from Florida cool
Posted 8/27/2015 7:54 PM (GMT -7)
DaSlink,

I added you to the club. I see you are not making the GFMPH NY but will be making it to Sonny's in Florida next year. I look forward to meeting you there. Were you there last year? If so maybe I do know you already.

Bill from Florida cool
Posted 8/27/2015 10:08 PM (GMT -7)
Big Mac,
I was classified a T3a. I guess, so far, I have been fortunate to have a slow growing cancer, despite the poor pathology. I have also had a good surgeon and radiation oncologist, who hit the positive margins left from surgery pretty accurately. I sure hate the worry before each test result comes back, though.
Prostate cancer chronology:
• Diagnosis 1/4/08
• Surgery 1/22/08 G4+5
• Psa tests 2/08, 3/08, 6/08, 9/08, 12/08, 4/09, 7/09, 8/09, 10/09, 1/10, 4/10 all <0.05
• Psa 6/22/10 0.06
• Psa 7/10 0.05
• Psa 9/10 0.05
• Psa 11/10 0.06
• Psa 1/4/11 0.08
• Radiation started 1/19/11 and completed 3/15/11
Psa 3/29/11 0.05
Psa since then (last 8/25/15) all <0.05
Posted 8/28/2015 12:25 AM (GMT -7)
Gee Northfoot, thats a great outcome for a G9 pT3A, and all done without HT.

You are the poster boy of the group.

I hope I get a similar results.

Chas
Age 68 at Dx
10/08 to 03/13 PSA 2.9 < 7.1
07/13 Bx 4+ cores from 12 GL 4+5 Pelvic CT and Bone Scan clear
08/13 LRP
Path: Gl 4+3 PNI, bladder mgn +, SV, LN Neg, pT3a N0 Mx
10/13 PSA .03
11/13 PSA .07
12/13 12 month ADT start (Zoladex) Continence good
01/14 37 sessions of RT
05/14 Incontinence back
11/14 Retentive due to RT nerve damage. SPC installed
12/14 ADT Break
05/14 thru 05/15 PSA <.01
Posted 8/28/2015 5:26 AM (GMT -7)

Redwing57 said...


Dr. Hussein? I see her at U of M.

Redwing,

I saw Dr. Kathleen Cooney. I believe she heads up the Advanced Prostate Cancer group at U of M. You can only get in to see her if you have Advanced PCa. Unfortunately for me, I now qualify for that.

-Bob
BD: 3/12/1955
PSA 1.5 - 2008, 5.1 12/2011
DRE - hard area on lft side
1/09/2012 biopsy - 5/12 100%, 80%, 50%, 25%, 15%: G7(3+4)
RALP: 4/17/2012
Path:
G8(4+4) w/ EPE
Both lobes involved.
Margins, Sem. Ves., lymph nodes neg.
11% involved
Stage (pT3a.pN0)
Post-op PSA: 5/12, 8/12, 11/12, 2/13, 5/13, 9/13, 1/14, 5/14, 9/14 < 0.06, 1/15,3/15 0.08,6/15 0.11
Posted 8/28/2015 10:42 AM (GMT -7)
Big Mac...Last summer we went to Worried guys for the Rochester event in September (2014). Then we went to Cajun Jeff's for the Baton Rouge event (2015)just this last spring.
Every minute you fish or ride,adds an hour to your life!
Age 52 Dx age 53 daVinci surgery
Biopsy 12 cores with 7 positive
Psa at surgery 49.8
RRP on 01/25/11
PT3a, Gleason 4+3=7
margin involved-Left anterior
lymph nodes clear
psa in 04/13-0.21,( 3rd rise), 35 IMRT treatments . Results were <0.1, 11-04-13(0.01). 04/01/14(0.01). 10/14(0.01). Since then, no change.
Posted 8/28/2015 12:58 PM (GMT -7)
I guess I will meet you at Sonny's next spring, I can't make Jeff's this year either. I am a Civil War buff and I have plans to spend sometime in Gettysburg right after the NY GFMPH.

Bill from Florida cool
Posted 8/28/2015 1:03 PM (GMT -7)
Big Mack
Thanks for the support. Love all you guys!
Bob
DOB January 1944 (now age 71)
1981: prostatitis corrected with meds.
2000-2013 BPH treated with finasteride & tamsulosin; also hypogonadism treated with androgel.
7/2008 PSA 0.6
3/2009 PSA 0.6
11/2011 PSA 2.2
8/2012 PSA 2.7
2/2013 PSA 5.5
4/2013 PSA 6.1
5/2013 PSA 6.6 (T ~700)
6/2013 trans-rectal biopsy (2 of six cores gl. 4+5=9), 10%, 40%, staged Pt1c
7/2013 bone scan negative
9/2013 ORRP (pathology gl. 4+5=9, +SVI, + .4 margin at right base, 10 Nodes negative, Staged Pt3bN0M0
11/2013 PSA 0.1
1/2014 PSA 0.2
4/2014 PSA 0.3 (T~ 350)
5/2014 3 T pelvic MRI, negative; 1st 22.5 mg. Lupron shot
6-7/2014 IMRT/IGRT 38 sessions total 68.2 gy. to prostate bed only
9/2014 2nd 22.5 mg. Lupron shot
9/2/2014 PSA <0.1 (T= 3)
12/2/2014 PSA <0.1 (T <3)
3/2/2015 PSA 0.1 (T= 328)
6/2/2015 PSA 0.4 Started on Avodart
6/17/2015 F-18 fluorodeoxyglucose CT PET scan : negative for PCa
7/8/2015 Colonoscopy: diverticulosis, radiation telangiectasias, (4 polyps benign)
7/24/2015 PSA 0.7 ( T=291)
Posted 8/29/2015 8:24 PM (GMT -7)
Add a 'b' to my pT3, if you would.
Still kickin' it!
Bob
T3BN1M0, G7 (3+4 R, 4+3 L) Psa 52 at Dx 9/11
Immediate Lupron - continuous
IMRT 3/12, 10 weeks
PSA dropped to <0.02, then began rapid rise to 7.9
Single vertebra met located 3/13, 3 wks radiation
PSA dropped to <0.02 after 5 weeks, and remains there!
11/13 - PSA <0.02
3/4/14 PSA <0.02 - started Provenge
4/4/14 - Provenge complete
10-10-14 - PSA <0.02 start Lupron holiday
5-1-15 PSA 0.14, T279
Posted 8/29/2015 10:01 PM (GMT -7)
Awesome effort, Big Mac and Micah! This club will help us t3's in many ways...You just can't get the whole picture from the doc's. I face my six month psa check on Tuesday and am hoping to stay in the zero club. Thanks for the extra effort to create the club!

Jim
2/2014 PSA 4.6(had been 1 to 2 forever)
3/2014 Biopsy Right prostate 3/6 cores have pc. GL 4 +3
Left side clear
7/2014 Lap Surgery LN's(negative), SVI, PNI, positive margins, EPE, 20% of prostate cancerous. GL 4 +4, t3b N0 M0
PSA 0 10/2014 :)
ART finished 3/15
PSA 0 6/2015
Posted 8/30/2015 5:15 AM (GMT -7)
Okay Bob, corrected your staging and good luck.

Jim,
Good luck with your next PSA test Tuesday, crossing my fingers for ya!

Bill from Florida cool
Posted 8/30/2015 6:46 AM (GMT -7)
Bill from Florida

Plse let me know when and where the FL GFMPH is happening.

Bob
Posted 8/30/2015 4:17 PM (GMT -7)
Bob,
The Florida GFMPH will be at Sonny's in 2016. He has begun to alternate with Jeff in LA. Last year it was held in March. I am hoping he has it again in March. He lives near the coast just north of Cocoa right off I-95

Bill from Florida cool

Post Edited (Big Mac) : 8/30/2015 5:20:59 PM (GMT-6)

Posted 8/31/2015 6:27 PM (GMT -7)
I thought i responded to but guess not. So, my horse has left the barn and headed right for the racedtrack, kicking and bucking all the way.
11/2013 psa 240
DX 10/2013 PSA 187.5
PSA HIST 07/2011, 3.31;3/2010,1.87,3/06,.87
Biopsy 10/28/2013; 4 cores positive gs 9 (4+5)
BN SCN 12/09/2013 2 hot spots in spine
ADT 12/17/2013 22mg lupr, 50 mg Cas
BN biopsy 01/09/2013 neg
RALP 2/19/2014 NN , LVI ,Path T3B NX, MX, prost size 4.2 X 4 X 3 cm, 31 gms.Post Op PSA 3/14 .6, 6/14<.1;9/8, .6;12/8, 1.2
12/14 CT SCAN; 1/15 BN SCN
Posted 9/9/2015 12:48 PM (GMT -7)
I am bumping this thread to the first page so the guys can continue to talk that need to.

Also, anyone who would like to join our little club within the forum, just let us know who you are and your stats Ex. pT3A or B, Gleason #, etc.

Anytime anyone would like to add to the thread, just look back to find it, add your comment, ask questions or just ask for support like Bob did on the other thread and it will bump it to the top of the first page for others to see. We are here to help and support each other. Most of us are waiting for the other shoe to drop and that is what this thread is all about.

Good luck Bob! You had your surgery the same month I was diagnosed so I am right behind you and following your lead.

Bill from Florida cool
Age - 64
Feb. 2012 - PSA 18.5 Biopsy 4/27/12
Positive 10 of 12 cores, Gleason 6 then
Da Vinci Surgery 07/17/12, Dr. Vipul Patel
EPE, 2 positive margins, Gleason 3+4=7, involving 50% of gland, prostate weight 57 g. Stage pT3a, Lymph node involvement: 0/4
Current PSA <0.1
AUS AMS 800 installed 4/11/14 finally dry!

Post Edited (Big Mac) : 9/10/2015 1:49:55 PM (GMT-6)

Posted 9/9/2015 1:25 PM (GMT -7)
Hey Bill,
I wasn't sure how long these threads can/should be. That's why I
stared the new one.
But...this is super too...thanks!
Mike
Posted 9/9/2015 2:12 PM (GMT -7)
These threads start to choke the system when they reach about 10 pages. Short of that, don't worry about it. You can keep it all in one thread.

Sometimes it's good for individuals to launch another thread for their own situation, but then we should also update the big thread so people find that info when doing google searches, or forum searches.
55@Dx 4/16/13
Bx: 6 of 12 pos, G9=5+4 (80%, 60%), 4+5 (2 at 100%, 80%, 10%), PNI+
cT3a (3T MRI: Bilateral EPE, NVB+, SV-, LN-)

Pre:
Date PSA fPSA
9/12 4.1 15%
3/13 5.2 12% PCA3=31
4/13 9.7

Tx:
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex 5/1/13

Post: (age now 57)
<0.1 PSA (w/ADT2): 8/13, 11/13, 2/14, 5/14, 10/14, 11/14, 3/15, 7/27
Posted 9/10/2015 11:51 AM (GMT -7)
We in the pT3 club have higher risk of relapse than those more fortunate peers with pT1 or pT2 stage and hence we often suffer more from anxiety for our PSA tests. I certainly do the week before I get the result. Maybe we can help each other by sharing how we individually manage our PSA anxiety. Please share how you are managing the PSA anxiety.
Age at detection 60
PSA 4.1 2014-02-25
Biopsy 2014-04-24, 4 of 10 cores positive, Gleason: 4+3
Bone scan negative,
DaVinci 2014-08-31, nerve sparing right side
Pathology: 35 g, 46x37x38 mm, no seminal vesicles involvement, 14 neg lymph nodes, neg surg. margins, pT3a, Gleason 4+3, EPE left side
2014-10-16 PSA <0.05
2015-03-04 PSA <0.05
2015-09-08 PSA <0.05
Posted 9/10/2015 12:47 PM (GMT -7)
Gemlin,
Great topic!

I am not real religious but I am a recovering alcoholic and I live by the Serinity Prayer. You know, accept the things I can't change and change the things I can.

It helps me not to get too worked up just before a PSA test because whatever my PSA is going to be, it already IS now. I need to accept what it is and deal with the consequences. It is totally out of my control so why worry about something I can't change. If it becomes 0.2 then I know I need to do a retest to confirm it stays there. If it does stay there, time to see an RO. Now the worrying will begin because I am more scared of radiation than of surgery. Ex. Purgatory's situation

Remember this, "Worrying is like riding a rocking horse, it gives you something to do but doesn't get you anywhere".

Bill from Florida cool
Age - 64
Feb. 2012 - PSA 18.5 Biopsy 4/27/12
Positive 10 of 12 cores, Gleason 6 then
Da Vinci Surgery 07/17/12, Dr. Vipul Patel
EPE, 2 positive margins, Gleason 3+4=7, involving 50% of gland, prostate weight 57 g. Stage pT3a, Lymph node involvement: 0/4
Current PSA <0.1
AUS AMS 800 installed 4/11/14 finally dry!

Post Edited (Big Mac) : 9/10/2015 1:54:29 PM (GMT-6)

Posted 9/10/2015 9:41 PM (GMT -7)

Gemlin said...
We in the pT3 club have higher risk of relapse than those more fortunate peers with pT1 or pT2 stage and hence we often suffer more from anxiety for our PSA tests. I certainly do the week before I get the result. Maybe we can help each other by sharing how we individually manage our PSA anxiety. Please share how you are managing the PSA anxiety.

I was surprised to feel a bit of anxiety the week before my recent 18 month test. And sure enough, I had become detectable at .01. I miss my < sign! Any way, I deal with it in the only way I know how: prayer, not just for a low number, but for acceptance of whatever is sent my way. Guess I can't say more than that, would probably break a rule. Hopefully I have not already done so.

Also I plan ways that I might be able to catch that horse and chase his sorry ass back into the barn where he belongs.
PSA 10.9 ~112013
Bx on 112013 at age 64 yrs 11 months, with 5 of 12 pos with one G9(5+4), 1 PNI, T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, but SV+, still G9 but down graded to 4+5, cut wide, but 1 tiny foci right at the edge of margin ) Pros. 106.7 gms!
At 15 months, not wearing a pad most days, mostly dry
PSA <.01 on 6/11, 8/20/14 and 3/4/15, up to .01 on 9/1/15
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