Calling all pT3 Club or "The Horse Has Left The Barn Boys"

thanks big mac
i have tried to add a signature.
i guess i am t3b. allen suspects similar. my reports simple say stage 3
imrt side effects finished within 3 weeks of completion.
but hot flashes and fatigue continuing.
2 oncologists in different hospitals differ on continuing HT or not. One says no more after six months as pc is intermediate. the second says continue for 2/3 years. very confusing!!!
Age – 64
apr 2015 psa 10.517 biopsy 2 out of 7 involved with tumor. Gleaon 6/10
mri apr 15 confirmed sv involved
bone scan- negative
HT started 10 may 15 lorelin 11.25 3 monthly. 2nd injection in august
Avodart and HT brought prostate size from 125 to 51
Imrt 40 sessions june 15, finished 6 sep
waiting for psa test

thanks for the welcome big mac- wish we had met under different circumstances!!
residence dubai but treatment in pakistan. hence the poor english.
I have been reading the mails on your forum and frankly I feel under educated. The last 6 months have been a roller coaster ride. wish i had found your forum earlier.
My gleason is 6 according to the reports but now I am doubtful- Allen on this forum suspects that it maybe higher. I will forward the scanned reports to you on your email as it will take too much space on this forum. I will be obliged if you can help out with gleason score etc.
regards

glad to know that it is low
if sv is involved that is t3a or t3b??????

After PSA rose to 1.22, I went to Sand Lake Imaging in Orlando on 9/9. Their scans found two suspicious iliac lymph nodes. Bones, organs were clear. So I'm undergoing DART (IMRT on steroids) here at Dattoli Cancer Center in Sarasota to pelvic lymph nodes , 50 sessions at 1.5 gray per = 75 grays. More fractions at lower gray is supposed to reduce toxicity while maximizing total radiation to kill PCa whether evident or microscopic. Plus I'm on 13 months of ADT3 ( Lupron, casodex, Avodart).
Hope this gets me a few more years.
Bob

hello Mac... I am a PT3a...NEPOL

Big Mac said...
Any new members want to join?????

Bill from Florida

Want to join? I can understand having to ask, because- no offense- who would want to join this club?

What is the old saying, Who would want to join a club that has me as a member, or something like that.

Bill from Florida

DJDEGO--- did you get a second opinion on tert. 5? Epstein says if 5% up it's ugly. hope it is not but you need to know.... luck to you.--...NEPOL

Well that didn't take long to come up with 2 new members.

Welcome to the pT3 Club Cincy12 and djdego and their DH's. I have added you to the growing membership.

Cincy12, you are correct, I believe it was a Woody Allen statement.
Sorry to see Tom's PSA is rising again. What if anything is he doing about it?

Welcome Jen, to HW and the exclusive pT3 club!
Sorry to see your DH is starting ADT already. Hopefully that will do the job. How is he doing so far with his side effects from his surgery?

We formed this little club inside of Healing Well to help each other that have been staged pT3 because we are a special group whose world could change again with a rise in PSA at any given time.

Both of you new members certainly qualify to be here with your DH's.

Remember members, we are here to help each other. If a member has a question or concern, if you can help with your experience, please jump in. If a member just wants to vent, help them get through these bumps in the road.

Bill from Florida

Cincy12, you and Tom are not alone in this. We are here for you. I haven't had recurrence yet so hopefully some of the brothers will come around and pass along some of their experience, strength and hope for both of you.

Keep the Faith

Bill from Florida

Thanks for the warm welcome. DH has had incontinence issues since his surgery. He is going to physical therapy to help that. With the PSA hanging at a .4 we opted for Lupron 4 month to let him hopefully get that back.We see the surgeon in january for "what next"

jen

Thanks for that Big Mac....I think it is a rush to get him healed up it seems he may need radiation if his PSA don't go lower with ADT. He has the next PSA january before the dr appointment. It is so hard on him. He had 0 symptoms and missed 1 blood test last year...I am glad to have found this group of real people to share with and pray I can help or share with others in the same boat.