Calling all pT3 Club or "The Horse Has Left The Barn Boys"

thanks big mac
i have tried to add a signature.
i guess i am t3b. allen suspects similar. my reports simple say stage 3
imrt side effects finished within 3 weeks of completion.
but hot flashes and fatigue continuing.
2 oncologists in different hospitals differ on continuing HT or not. One says no more after six months as pc is intermediate. the second says continue for 2/3 years. very confusing!!!
Age – 64
apr 2015 psa 10.517 biopsy 2 out of 7 involved with tumor. Gleaon 6/10
mri apr 15 confirmed sv involved
bone scan- negative
HT started 10 may 15 lorelin 11.25 3 monthly. 2nd injection in august
Avodart and HT brought prostate size from 125 to 51
Imrt 40 sessions june 15, finished 6 sep
waiting for psa test

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Age – 64
apr 2015 psa 10.517 biopsy 2 out of 7 involved with tumor. Gleason 6/10
mri apr 15 confirmed sv involved
bone scan- negative
HT started 10 may 15 lorelin 11.25 3 monthly. 2nd injection on august 10
Avodart and HT brought prostate size from 125 to 51. psa .5
Imrt 40 sessions june 15, finished 6 sep
waiting for psa test

Post Edited (monty786) : 10/10/2015 7:45:44 AM (GMT-6)

thanks for the welcome big mac- wish we had met under different circumstances!!
residence dubai but treatment in pakistan. hence the poor english.
I have been reading the mails on your forum and frankly I feel under educated. The last 6 months have been a roller coaster ride. wish i had found your forum earlier.
My gleason is 6 according to the reports but now I am doubtful- Allen on this forum suspects that it maybe higher. I will forward the scanned reports to you on your email as it will take too much space on this forum. I will be obliged if you can help out with gleason score etc.
regards

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Age – 64
apr 2015 psa 10.517 biopsy 2 out of 7 involved with tumor. Gleason 6/10
mri apr 15 confirmed sv involved
bone scan- negative
HT started 10 may 15 lorelin 11.25 3 monthly. 2nd injection on august 10
Avodart and HT brought prostate size from 125 to 51. psa .5
Imrt 40 sessions june 15, finished 6 sep
waiting for psa test

glad to know that it is low
if sv is involved that is t3a or t3b??????

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Age – 64
apr 2015 psa 10.517 biopsy 2 out of 7 involved with tumor. Gleason 6/10
mri apr 15 confirmed sv involved
bone scan- negative
HT started 10 may 15 lorelin 11.25 3 monthly. 2nd injection on august 10
Avodart and HT brought prostate size from 125 to 51. psa .5
Imrt 40 sessions june 15, finished 6 sep
waiting for psa test

After PSA rose to 1.22, I went to Sand Lake Imaging in Orlando on 9/9. Their scans found two suspicious iliac lymph nodes. Bones, organs were clear. So I'm undergoing DART (IMRT on steroids) here at Dattoli Cancer Center in Sarasota to pelvic lymph nodes , 50 sessions at 1.5 gray per = 75 grays. More fractions at lower gray is supposed to reduce toxicity while maximizing total radiation to kill PCa whether evident or microscopic. Plus I'm on 13 months of ADT3 ( Lupron, casodex, Avodart).
Hope this gets me a few more years.
Bob

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DOB January 1944 (now age 71)
1981: prostatitis corrected with meds.
2000-2013 BPH treated with finasteride & tamsulosin; also hypogonadism treated with androgel.
7/2008 PSA 0.6
3/2009 PSA 0.6
11/2011 PSA 2.2
8/2012 PSA 2.7
2/2013 PSA 5.5
4/2013 PSA 6.1
5/2013 PSA 6.6 (T ~700)
6/2013 trans-rectal biopsy (2 of six cores gl. 4+5=9), 10%, 40%, staged Pt1c
7/2013 bone scan negative
9/2013 ORRP (pathology gl. 4+5=9, +SVI, + .4 margin at right base, 10 Nodes negative, Staged Pt3bN0M0
11/2013 PSA 0.1
1/2014 PSA 0.2
4/2014 PSA 0.3 (T~ 350)
5/2014 3 T pelvic MRI, negative; 1st 22.5 mg. Lupron shot
6-7/2014 IMRT/IGRT 38 sessions total 68.2 gy. to prostate bed only
9/2014 2nd 22.5 mg. Lupron shot
9/2/2014 PSA <0.1 (T= 3)
12/2/2014 PSA <0.1 (T <3)
3/2/2015 PSA 0.1 (T= 328)
6/2/2015 PSA 0.4 Started on Avodart
6/17/2015 F-18 fluorodeoxyglucose CT PET scan : negative for PCa
7/8/2015 Colonoscopy: diverticulosis, radiation telangiectasias, (4 polyps benign)
7/24/2015 PSA 0.7 ( T=291)

Post Edited (Break60) : 10/11/2015 1:39:17 PM (GMT-6)

hello Mac... I am a PT3a...NEPOL

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Biopsy: 11 out of 12 G4+4
Clinical stage: PT3ANO
Bone scan, CT scan, clear Margins + Lymph Nodes, Vessels clear
RALP on October 7, 2014
Downgraded G4+3
PSA on January 14, 2015 .021
RT 39 sessions March 16th
PSA April 10, 2015 1.83
April 14th, started elligard
PSA June 12, 2015 0.01
PSA July 8, 2015 0.01
Next PSA in January 2016 age at dx 64 and 7 m0. UP GRADED 4+5=9

Big Mac said...
Any new members want to join?????

Bill from Florida

Want to join? I can understand having to ask, because- no offense- who would want to join this club?

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PSA 10.9 ~112013
Bx on 112013 at age 64 yrs 11 months, with 5 of 12 pos with one G9(5+4), 1 PNI, T2B.
RALP with lymph nodes at Vanderbilt 021914. (nodes clear, but SV+, still G9 but down graded to 4+5, cut wide, but 1 tiny foci right at the edge of margin ) Pros. 106.7 gms!
At 15 months, not wearing a pad most days, mostly dry
PSA <.01 on 6/11, 8/20/14 and 3/4/15, up to .01 on 9/1/15

What is the old saying, Who would want to join a club that has me as a member, or something like that.

Bill from Florida

DJDEGO--- did you get a second opinion on tert. 5? Epstein says if 5% up it's ugly. hope it is not but you need to know.... luck to you.--...NEPOL

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Biopsy: 11 out of 12 G4+4
Clinical stage: PT3ANO
Bone scan, CT scan, clear Margins + Lymph Nodes, Vessels clear
RALP on October 7, 2014
Downgraded G4+3
PSA on January 14, 2015 .021
RT 39 sessions March 16th
PSA April 10, 2015 1.83
April 14th, started elligard
PSA June 12, 2015 0.01
PSA July 8, 2015 0.01
Next PSA in January 2016 age at dx 64 and 7 m0. UP GRADED 4+5=9

Well that didn't take long to come up with 2 new members.

Welcome to the pT3 Club Cincy12 and djdego and their DH's. I have added you to the growing membership.

Cincy12, you are correct, I believe it was a Woody Allen statement.
Sorry to see Tom's PSA is rising again. What if anything is he doing about it?

Welcome Jen, to HW and the exclusive pT3 club!
Sorry to see your DH is starting ADT already. Hopefully that will do the job. How is he doing so far with his side effects from his surgery?

We formed this little club inside of Healing Well to help each other that have been staged pT3 because we are a special group whose world could change again with a rise in PSA at any given time.

Both of you new members certainly qualify to be here with your DH's.

Remember members, we are here to help each other. If a member has a question or concern, if you can help with your experience, please jump in. If a member just wants to vent, help them get through these bumps in the road.

Bill from Florida

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Age - 64
Feb. 2012 - PSA 18.5 Biopsy 4/27/12
Positive 10 of 12 cores, Gleason 6 then
Da Vinci Surgery 07/17/12, Dr. Vipul Patel
EPE, 2 positive margins, Gleason 3+4=7, involving 50% of gland, prostate weight 57 g. Stage pT3a, Lymph node involvement: 0/4
Current PSA <0.1
AUS AMS 800 installed 4/11/14 finally dry!

Cincy12, you and Tom are not alone in this. We are here for you. I haven't had recurrence yet so hopefully some of the brothers will come around and pass along some of their experience, strength and hope for both of you.

Keep the Faith

Bill from Florida

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Age - 64
Feb. 2012 - PSA 18.5 Biopsy 4/27/12
Positive 10 of 12 cores, Gleason 6 then
Da Vinci Surgery 07/17/12, Dr. Vipul Patel
EPE, 2 positive margins, Gleason 3+4=7, involving 50% of gland, prostate weight 57 g. Stage pT3a, Lymph node involvement: 0/4
Current PSA <0.1
AUS AMS 800 installed 4/11/14 finally dry!

Thanks for the warm welcome. DH has had incontinence issues since his surgery. He is going to physical therapy to help that. With the PSA hanging at a .4 we opted for Lupron 4 month to let him hopefully get that back.We see the surgeon in january for "what next"

jen

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DX 6/15 PSA 31.9 age 56
biopsy 7/15
12 of 15 cores pos gleason score 8 T2c
CT neg Bone scan neg
RALP on 9/8 pathology SVI / EPE pos/ pNO / pT3b / invasive (<1mm extent) G 7 (4+3) tertiary 5
10/7/15 PSA .4
11/3/15 PSA .4
11/4 started 4 month ADT

Thanks for that Big Mac....I think it is a rush to get him healed up it seems he may need radiation if his PSA don't go lower with ADT. He has the next PSA january before the dr appointment. It is so hard on him. He had 0 symptoms and missed 1 blood test last year...I am glad to have found this group of real people to share with and pray I can help or share with others in the same boat.

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DX 6/15 PSA 31.9 age 56
biopsy 7/15
12 of 15 cores pos gleason score 8 T2c
CT neg Bone scan neg
RALP on 9/8 pathology SVI / EPE pos/ pNO / pT3b / invasive (<1mm extent) G 7 (4+3) tertiary 5
10/7/15 PSA .4
11/3/15 PSA .4
11/4 started 4 month ADT