Calling all pT3 Club or "The Horse Has Left The Barn Boys"

Micah68,
I understand your concern as do most here.
You are at 0.03, which is a long ways from recurrence. 0.2 or maybe 0.3 is the standard for recurrence.
I'm betting most specialists wouldn't change your treatment yet.
You really should wait a bit and have another PSA test performed.
Then if it is still rising, take a breath and go ask your doc/specialist what to do.
My numbers are similar to yours(except I'm a 4+5), and I chose not to start the ultra-sensitive test simply bc it just causes angst.

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PSA at age 49, 4.0 NO ref by PCP
PSA at Age at diagnosis, 54 in 2013
My PSA Curve
, DRE negative but firm, prostate volume 51.56
Degarelix shot 10/13
Robotic 11/13
Degarelix shot 12/13
0.4 12/13
<0.1 every 4 months since
EBRT June 2015
local GS 9 - 4+5 , Stage pT3b N1
12 out of 12 co

Hey brother Micah, How have you been?

Sorry to see you are slowly on the rise again. I can't help you for advice but maybe some of the others can. I am sitting at <0.06 and I am happy but I haven't been through what you have already been through. If it was me, I would just continue to watch it like you have been told. My doctor said he would like to see a consistent rise before acting, but again, I am way behind you in treatment.

Good luck, I hope you get some input from some of the guys and maybe a referral to a doctor in your area.

Anyone out there have favorite PC Specialist in the Indianapolis/Nashville/St. Louis/Cincinnati area?

Bill from Florida

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Age - 65
Feb. 2012 - PSA 18.5 Biopsy 4/27/12
Positive 10 of 12 cores, Gleason 6 then
Da Vinci Surgery 07/17/12, Dr. Vipul Patel
EPE, 2 positive margins, Gleason 3+4=7, involving 50% of gland, prostate weight 57 g. Stage pT3a, Lymph node involvement: 0/4
Current PSA 0.06
AUS AMS 800 installed 4/11/14 finally dry!

Thought I would bump this thread to the top to celebrate Mike and Bob's latest results.

Congrats guys.

Just look for the thread in the search box in the right hand corner of the screen reading "Google Custom Search"


Bill from Florida

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Age - 65
Feb. 2012 - PSA 18.5 Biopsy 4/27/12
Positive 10 of 12 cores, Gleason 6 then
Da Vinci Surgery 07/17/12, Dr. Vipul Patel
EPE, 2 positive margins, Gleason 3+4=7, involving 50% of gland, prostate weight 57 g. Stage pT3a, Lymph node involvement: 0/4
Current PSA 0.06
AUS AMS 800 installed 4/11/14 finally dry!

my profile didnt go through!!!

club member as pt3b.
just updated my profile.

Age – 64 at dx apr 2015
apr 2015 psa 10.517 Gleason 3 +3 = 6
mri apr 15 ca stage t3b, sv involved
bone scan- negative
HT started 10 may 15 lorelin 11.25 3 monthly.
pre radiation psa 0.5
Imrt 40 sessions june 15
6 nov psa .003. 6 months ht completed. advised 3 monthly psa
22 feb psa .003
no significant SEs except hot flashes continuing

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Age – 64 at dx apr 2015
apr 2015 psa 10.517 Gleason 3 +3 = 6
mri apr 15 ca stage t3b, sv involved
bone scan- negative
HT started 10 may 15 lorelin 11.25 3 monthly.
pre radiation psa 0.5
Imrt 40 sessions june 15
6 nov psa .003. 6 months ht completed. advised 3 monthly psa
22 feb psa .003
no significant SEs except hot flashes continuing

First post surgery PSA test. .05.

Discussing ART in the next 3 to 6 months.

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DX on 11/12/15 Age 56. PSA slow increase from 3 to 7.75
Gleason 4+5=9
CT Scan and Bone Scan Negative
Robotic Surgery on 1/11/16
Primary Pattern 4, Secondary Pattern 5
Post Surgery Pathologic Stage pT3b. Tumor involves approx. 30% of prostrate
Lymph Nodes negative for tumor
Margins Negative for Tumor

Next step: Meeting with RO to discuss RT if needed. Urologist says he would recommend.

Fourth post surgery PSA test came back today. Exactly 19 month since the surgery day. PSA <.05 this time also. Anxiety is the same the day of the test each time. How many tests are needed before you will not have this PSA anxiety?

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Age at detection 60
PSA 4.1 2014-02-25
Biopsy 2014-04-24, 4 of 10 cores positive, G: 3+4,4+3,4+3 EPE,4+3. PNI
Bone scan negative
DaVinci 2014-08-31, nerve sparing right side
Pathology: 35 g, 46x37x38 mm, no seminal vesicles inv, 14 neg lymph nodes, neg surg. margins, pT3a, G7 (4+3), EPE left side
PSA:
2014-10-16 <0.05
2015-03-04 <0.05
2015-09-08 <0.05
2016-03-31 <0.05

Fly with me, I added you to our club, welcome aboard! Sounds like you are having a battle with this crap. You are not alone any more.

Whenever you want to add something to to this thread, ask a question or just vent, go to the Google search in the top right side of this page and type in pT3 club to find this thread and add a post.

I am not on HW as much lately but someone will come to your rescue.

Gemlin, Congrats on your PSA results. No the anxiety doesn't go away like Bob said. We are all in a holding pattern in this group. I have been holding at 0.06 now for awhile. I just hope it STAYS THERE!

Bill from Florida

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Age - 65
Feb. 2012 - PSA 18.5 Biopsy 4/27/12
Positive 10 of 12 cores, Gleason 6 then
Da Vinci Surgery 07/17/12, Dr. Vipul Patel
EPE, 2 positive margins, Gleason 3+4=7, involving 50% of gland, prostate weight 57 g. Stage pT3a, Lymph node involvement: 0/4
Current PSA 0.06
AUS AMS 800 installed 4/11/14 finally dry!

FYI - Interesting information - I input my information and it comes out to me having a 96% chance of living 15 years post surgery - Nothing was stated about additional treatments, RT or Hormones. For me, something to think about as 15 years brings me out to 84 years old!


Our post-radical prostatectomy nomogram can be used by patients after their surgical treatment for prostate cancer. Using a dynamic statistical formula, this nomogram predicts the probability of remaining cancer recurrence-free at two, five, seven, and ten years following surgery. This nomogram also predicts 15-year cancer-specific survival, meaning the likelihood that you will NOT die of prostate cancer within 15 years following surgery.

post-radical prostatectomy nomogram Link

https://www.mskcc.org/nomograms/prostate/post-op

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Age: 69, 69 at PC dx, PSA 6.7 Avodart (6.7 x 2.3 = 15.5)
Biopsy: 2/16 13 of 14 Positive, 2-99%, GL 8, 2nd look GL 7 (4+3)
RALP 4/20/16
Post OP Pathology:
Non-Focal EPE, 2 positive margins, Gleason 4+3=7, involving 50% of gland, prostate weight 31.5 g, Stage pT3a N1 Lymph node involvement: 2/10, right side positive, Diameter of largest N Metastisis 2 mm

Gemlin -

If you look at the study/report that analyzes the data - positive seminal vesicles lower that percentage by the most of any other attribute.

Bobby Mac

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Age: 69, 69 at PC dx, PSA 6.7 Avodart (6.7 x 2.3 = 15.5)
Biopsy: 2/16 13 of 14 Positive, 2-99%, GL 8, 2nd look GL 7 (4+3)
RALP 4/20/16
Post OP Pathology:
Non-Focal EPE, 2 positive margins, Gleason 4+3=7, involving 50% of gland, prostate weight 31.5 g, Stage pT3a N1 Lymph node involvement: 2/10, right side positive, Diameter of largest N Metastisis 2 mm

May I join this club? I am still new to all of this, but I was told I have "high risk" prostate cancer. Here is what I know so far:
Age 58
Diagnosed Feb, 2016
Gleason 8 (4+4), Pelvic CT positive lymph node, negative bone scan
Surgery April 18, 2016 (DaVinci, still wearing Depends)
Pathology T3aN1 report stated one lymph node was 100% cancer
Ductal cancer, surgeon stated he did not get all of it
First post surgery PSA will be on May 18, 2016
First appointments with Radiologist and Oncologist May 8 and 10.

All for one and one for all! With a great group like this perhaps there is a reason to be optimistic!

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58 when diagnosed
DaVinci surgery 4/18/2016
Gleason 8 (4+4)
T3aN1 ductal

Dr Who,

Misery LOVES company!

Bill from Florida

Newtopc,

I added you to the club. Sorry I missed your post, I am not a daily visitor to HW any more. I just stopped in today and saw your post.

If you have any comments or concerns, just look for this thread and add to it, someone will come along and join in.

It looks like you are a seasoned Healing Well member so you know the routine.

Bill from Florida