Quick update. Wheels are in motion to get Steve off my ins plan and on to Medicare. Possibly as early as Oct 1, but by Nov 1 for sure. Better news than we thought as Jan 1 seemed a long time to wait.
The upside - With Medicare comes a greatly expanded "network". I think Steve is pretty comfortable with the Cleveland Clinic but we've also had some email exchanges with Dr Chris King when deciding between SBRT and HDR brachy. Not trying to muddy the waters -- just thinking ahead.
Suz - Karen and I are looking forward to meeting yu adn Steve in Rochester next week.
Dr. King did my SBRT and Dr Scholz's office in Marina del Rey CA oversaw my Provenge. both 100 % paid for by Medicare and AARP/United Health Care Medicare supplement Plan F.
Though I live in west central FL and they are each in CA, no issues.
screen name was LupronJim
66 - DX 64 2/13 PSA 3.68 (6 mo doubling) Gleason 9 (4+5)
T1CN0M1B stage IV w. 7 of 12 cores worst ones 70% right PNI
oligometastatic at Dx 5 tumors 1 right sacro, 2 on
T4 & T9, none visible on 5-21-14 whole bodyscan
Lupron 3-28-13 to 4-2-15
Zytiga June '14 to May '15
PSA < 0.01, T < 3 on 5/14
DHT < 5
Prostate shrunk from 50.4 to 15.0
Provenge in Sept & SBRT in Oct