I've seen that U of Rochester MC is involved in a research project which affects your case, and I was wondering if they've involved you in it, and what your thoughts are on it. The research is titled: Development and Evaluation of an Active Surveillance Decision Aid for Men with Low Grade Prostate Cancer
As most folks who have been around here for a while are aware (but probably not many newcomers are aware), one of the key strategies for combatting Prostate Cancer overtreatment of low-risk men is "patient education." Prior research has validated the notion that the more low-risk men (like you) understand about
the disease, the less apt they are to seek/request/demand an aggressive treatment like surgery.
An article in Urology Times a couple years ago put it this way, "The concept that a cancer may not need to be treated is certainly foreign to most patients. Dr. Kim and colleagues appropriately note that increased education at the time of diagnosis about active surveillance may help in the decision process...[and they developed] a ‘Decision counseling and shared decision making’ program that has helped men become better informed about treatment choices and reduced uncertainty in treatment decision making."
The article then summarized that "The combined intervention resulted in more men choosing active surveillance."
So, URMC is leading one of
(there are several; nice to have it in your backyard, though) the current research efforts on "Decision Aids," and in fact a full descript
ion can be found HERE
HERE at the ClinicalTrial.gov website. Dr James Dolan, a researcher/internist from URMC is leading the study.
I realize that you've been seeing Dr Ghazi...and Dr Ghazi is definitely a gung-ho surgery guy (just read his Patient Care Bio). But the gung-ho surgery guys, especially on staff at a smallish hospital that has recently invested the $2M capital budget for a new DaVinci robot, might not be the best physician for a low-risk PC case (like you) to consult with.
Here's an idea: contact Dr Dolan's office and ask for a reference/referral to a local urologist who has lots of AS cases...I bet he knows who to send you to. Just an idea.
Anyhow, did they invite you to participate in the URMC "Decision Aid" study? What were your thoughts on it?