Wow. Welcome to the forum, and as we usually say sorry you need to be here but glad you found us. I've added you to the illustrious G9 Crew roster. It's a thread we started a while back as a gathering place for those facing a G9 diagnosis. It's a place to share and get support for some of the specific concerns G9s tend to have. In no way exclusionary, it's just that our issues tend to differ from most of the PCa folks. You'll find lots of us there, most doing pretty well. Here's a link to the current thread (there's also an earlier one linked in it that just got too long.)www.healingwell.com/community/default.aspx?f=35&m=3182035&g=3182504#m3182504
To your issue... tough call. You list the same symptoms I'm enjoying with ADT. What a ride, and I wouldn't wish this on anyone. It would be wonderful to get off of it.
I'm on ADT as part of my primary treatment, neoadjuvant with radiation therapy. Lupron and Casodex were started in May 2013, so I'm about
2 and 1/2 years into the sentence. Final shot will be in November, running out about
next March or so. My case is in the fortunately-rare arena of very high risk, so we're doing all we can with curative intent. No mets, PSA still <0.1, so happy right now. I'm hoping for a recovering T with steadily low PSA as this treatment wears off.
The CHAARTED study came out long after I began this regimen. Not sure how it would apply for me now.
Stay with us. This is a great group of guys, with a lot of shared wisdom and experience.
Bx: 6 of 12 pos, G9=5+4 (80%, 60%), 4+5 (2 at 100%, 80%, 10%), PNI+
cT3a (3T MRI: Bilateral EPE, NVB+, SV-, LN-)
Date PSA fPSA
9/12 4.1 15%
3/13 5.2 12% PCA3=31
IGRT by IMRT, 44 done 8/28/13: 50.4 Gy pelvic nodes, 79.2 Gy prostate
ADT2 3 yrs: Lupron/Casodex 5/1/13
Post: (age now 57)
<0.1 PSA (w/ADT2): 8/13, 11/13, 2/14, 5/14, 10/14, 11/14, 3/15, 7/27