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Posted 7/27/2016 6:14 PM (GMT -7)
Thanks Allen.
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT started 05/07/2016-Tot 46 Gy, 17 Down...6 to go
NTAF MY FRIENDS...EEEE
Posted 7/27/2016 9:32 PM (GMT -7)
FYI, I also had the mucousy stuff. It went away pretty quickly after IMRT was over.

Almost there! Keep on putting one foot in front of the other!
Age 55, Diagnosed at 51
PSA 9.6, Gleason: 9 (5+4), three 7s (3+4)
Chose triple play of HDR brachy, IMRT and HT (Casodex, Lupron and Zytiga)
Completed HT (18 months) in April 2014
6/16: T = 162, PSA = 0.20
Posted 8/3/2016 8:48 AM (GMT -7)
Captain's Log...Star Date 124/120...T-41...20/23.

So, there it is...Hormone Therapy, DONE!, HDRBRT, DONE!, and only 3 EBRT sessions left to do, then it's DONE...DONE...DONE.

Then what? Dr Morton says "See ya in November". Really? So that's how it ends? No instant treatment validation...no "You're Cured, so go and live the rest of your life without worry".

Geeze...that seems pretty friggin' anticlimactic.

I still feel like I've cheated in my treatment somehow, even though I have a few "mild" SE's. Somehow, I keep thinking the prostate TAX MAN is gonna come and AUDIT me, and find me guilty of some little thing, with a stiff penalty.


I guess I need to plan my new Chronicles "POST TREATMENT" thread.

Maybe I'll title it "WHAT TO EXPECT WHEN YOU DON'T KNOW WHAT TO EXPECT"


Newt out...er, almost out anyways!
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT started 05/07/2016-Tot 46 Gy, 20 Down...3 to go
NTAF MY FRIENDS...EEEE
Posted 8/3/2016 9:00 AM (GMT -7)
Congrats! May your T increase be rapid and steep!
Age 55, Diagnosed at 51
PSA 9.6, Gleason: 9 (5+4), three 7s (3+4)
Chose triple play of HDR brachy, IMRT and HT (Casodex, Lupron and Zytiga)
Completed HT (18 months) in April 2014
6/16: T = 162, PSA = 0.20
Posted 8/3/2016 2:55 PM (GMT -7)
Thanks Michael. I'm trying to pick a."Crack open.the bubbly" point, but I don't know what that looks like yet.
Last night was the 1st night in 3 months that I didn't have hot flashes and night sweats while I was sleeping so maybe...just maybe Mr T is waking up.
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT started 05/07/2016-Tot 46 Gy, 20 Down...3 to go
NTAF MY FRIENDS...EEEE
Posted 8/5/2016 3:55 PM (GMT -7)
Captains Log...Star Date...126/120...T-45...23/23

The mission is complete. Time to grab a little gravity from Pluto and slingshot my way back to Earth.


Newt Out
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT started 05/07/2016-Tot 46 Gy, 23 Down...0 to go...DONE!
NTAF MY FRIENDS...EEEE
Posted 8/5/2016 4:37 PM (GMT -7)
I assume the cloaking device has now been activated on your prostate and for all intents and purposes, while it might still be there, you'll never see or hear of it again.

Congrats on finishing. To go with the Olympics starting up, radiation is a marathon, while surgery is like running the 400 meters--neither a sprint nor a distance race.
Age 55, Diagnosed at 51
PSA 9.6, Gleason: 9 (5+4), three 7s (3+4)
Chose triple play of HDR brachy, IMRT and HT (Casodex, Lupron and Zytiga)
Completed HT (18 months) in April 2014
6/16: T = 162, PSA = 0.20
Posted 8/6/2016 6:20 AM (GMT -7)
Thanks Michael. It was not as anticlimactic as I anticipated. I got a "graduation" certificate in the ways of a what to expect pamphlet, a hug from one of my regular RT's, and a visit from one of the OR RN's who worked on my HDRBRT that I didn't actually remember, but apparently she remembered me. Celebrated the completion with some yummy McDonald's and spent the evening relaxing watching the Rio opening ceremonies.
Today, I'll drive up to the lake and enjoy the weekend on the water with the fam.
Hope you all have an exceptional weekend!
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT started 05/07/2016-Tot 46 Gy, 23 Down...0 to go...DONE!
NTAF MY FRIENDS...EEEE
Posted 4/17/2017 3:24 PM (GMT -7)
Hi fellow forumites. Just popped in for a brief update. 6 month PSA test came back today. Oct 2016 was 0.10 and Apr 2017 came back 0.073, so still looking for the nadr, and heading in the right direction.

Hope you all are doing fine!

Newt
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT 23×2gy
PSA Tests: 10/16-.10
Posted 4/17/2017 3:53 PM (GMT -7)
Hey Newt! Looks good. When do you come off Lupron?
Allen - not an MD
•PSA=7.3, prostate volume=55cc, 8/17 cores G6 5-35% involvement
•SBRT 9 yr onc. results •SBRT 7 yr QOL results
•treated 10/2010 at age 57 at UCLA,PSA now: 0.1,no lasting urinary, rectal or sexual SEs
my PC blog
Posted 4/17/2017 6:05 PM (GMT -7)
Hi Allen. Been off it since September 2016. Only had the 1 four-month dose.
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT 23×2gy
PSA Tests: 10/16-.10
Posted 4/17/2017 8:06 PM (GMT -7)
And how is your T level doing?
Posted 4/18/2017 3:23 AM (GMT -7)
My T levels are back to normal.
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT 23×2gy
PSA Tests: 10/16-.10
Posted 4/18/2017 9:37 AM (GMT -7)
Great-- even more good news!
Allen - not an MD
•PSA=7.3, prostate volume=55cc, 8/17 cores G6 5-35% involvement
•SBRT 9 yr onc. results •SBRT 7 yr QOL results
•treated 10/2010 at age 57 at UCLA,PSA now: 0.1,no lasting urinary, rectal or sexual SEs
my PC blog
Posted 4/18/2017 9:41 AM (GMT -7)
Thanks Allen. I agree. My T levels returned back in November 2016. Other then some lower bowel inflamation that I try to control with diet, and of course an enlarged prostate, by all accounts I am doing well.
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT 23×2gy
PSA Tests: 10/16-.10
Posted 4/18/2017 10:33 AM (GMT -7)
Newton-
I just read your story. What an informative, yet humorous account of your treatment! What I like about this forum is people, like you, who share their experiences. Newt's Chronicles are a great resource for new members joining our club.

It is wonderful to read of your outcome. Congrats!
Age at diagnosis-66 Diagnosed 6/16, PSA rise, then biopsy.
RALP 10/16 at U of Chicago, Dr. Shalhav. Experienced internal bleeding post op requiring transfusion of 2 units.
Pathology Gleason 3+4=7, tumor volume 15% Margins negative except for one focal margin, .1mm
pT2c,N0,MX,R1
PSA @ 6 wks <0.02;16 wks <0.02
My storywww.healingwell.com/community/default.aspx?f=35&m=3777359
Posted 4/18/2017 11:14 AM (GMT -7)
Thanks Tennisplayer. If u want to read something real and funny, search for my "Perils of Pokemon Go" post.
Be forewarned not to be drinking coffee when you read it, as coffee stains are hard to get off computer monitors and hot coffee burns when it comes out your nose.
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT 23×2gy
PSA Tests: 10/16-.10
Posted 11/1/2017 8:59 AM (GMT -7)
Buenos Tequilas Amigos!

Just had my semi-annual PSA. Happy to report PSA of 10/17 is down to .06 (05/17 was .073)

WOOT!!! Going dooowwwnnnn stil.
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT 23×2gy
PSA Tests: 10/16-.10, 05/17 - .073, 10/17 - .06
Posted 12/12/2018 4:41 AM (GMT -7)
Hi team. Short update - Last PSA was 31 Oct 2018. PSA is down to 0.050 now. The Doc put me on 1-year protocol now. Last week, we found an issue with my wife. Large mass in the area where her ovaries are supposed to be. On a fast track to Princess Margaret Hospital.

Hope you are all doing well.

Newt
Age at DX 53
PSA 11/14=8, 11/15=11.5
DRE Nodule LHS LWR
22 Jan 2015, Biopsy 3 of 10 positive
3+3, 4+3, 4+4
Scans...NEG for METs
Triple Play Chosen (HT/HDRBT/EBRT)
Lupron Depot/Casodex 4 months base plan - Started 31st March
03/31/16 PSA=10.40, T=9.0
05/19/16 PSA=.64, T=<.6
HDRBRT 21/06/2016-16 Cath, 15Gy
EBRT 23×2gy
PSA Tests: 10/16-.10, 05/17 - .073, 10/17 - .06, 04/18 - .06, 10/18 - .05
Posted 12/12/2018 7:57 AM (GMT -7)
Newt, Great numbers and great progress! Hoping for the best for your wife.

J
Posted 12/12/2018 11:06 AM (GMT -7)
Great PSA number.

Sorry to hear about your wife, hopefully they can get that taken care of soon.

Andrew
I'll be in the shop.
Age 58, 52 at DX
PSA:
4.2 10/11, 1.9 6/12, 1.2 12/12, 1.0 5/13, .6 11/13,
.7 5/14, .5 10/14, .5 4/15, .3 10/15, .3 4/16, .4 10/16, .4 5/17, .3 10/17 .3 4/18, .4 11/18
G 3+4
Stage T1C
2 out of 14 cores positive
Treatment IGRT - 2/2012
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