Hearing the word "cancer" is always scary, and because of what we know about
other cancers, there is always an initial rush to get treated. I hope you will resist that emotional response - if instead you take your time to make this decision, you will probably be glad you did, even if you circle back to the same place. Your "very low risk" diagnosis gives you plenty of time to gather more info before you decide.
First, I hope you send your biopsy slides to Epstein or Bostwick for a second opinion. It's something you want to be sure about
and they are the experts.
And, speaking of experts, that's what you really should do first, and you apparently have not yet done. You discussed 3 options with one doctor who, I'd wager, is only an expert in one of them and knows little about
the others. You have to take the initiative to seek out experts in each therapy and find out about
it. The first thing you will want to know more about
is called Active Surveillance. In the longest running test of Active Surveillance, about
half the men needed no treatment 20 years later, and those that did did no worse than if they got treated immediately - enjoying symptom-free living in the meantime. I'm sure that U of C and Northwestern have good AS programs.
There is absolutely no need for a bone scan or any other imaging right now - it will only drive you crazy and send you on a wild goose chase. If you think you are unnecessarily worried by every little ache now, bone scans will make that worse. If a doctor needs imaging for his treatment, he will tell you which he needs.
You have many great treatment options in the Chicago area. You have:
• Dr Catalona at Northwestern for surgery,
• Brian Moran at the Chicago Prostate Center for LDR brachytherapy (seeds)
• one of our members, 0311, gave Arica Hirsch at Advocate Lutheran glowing reviews for SBRT
• Alvaro Martinez in Detroit for HDR brachytherapy
You even have the possibility of focal ablation. Lots of excellent options available to you for you to learn about
Allen - not an MD
•PSA=7.3, prostate volume=55cc, 8/17 cores G6 5-35% involvement
•SBRT 9 yr onc. results
•SBRT 7 yr QOL results
•treated 10/2010 at age 57 at UCLA
•PSA now: 0.2
No lasting urinary, rectal or sexual side effects