Posted 5/20/2016 7:18 PM (GMT -7)
Divo, so good to hear from you and on behalf of Pete. Real LTNS. Too long.
Yes, I remember Pete's situation well, hope he's still holding his own. It's really tough dealing with the Colostomy and Urostomy at the same time, I am fearful it will come down to that for me at some point.
Every time I have a new blockage, the ER surgeons remind me that it is a very possible outcome if it doesn't resolve on its own without and emergency surgery. Two ER visits ago, I was minutes away from being wisked to surgery.
Told my wife, I don't want to wake up and find I have a colostomy as well.
My wife generally changes my appliance weekly for me, just easier for someone standing over the stoma to line it up right. I can change my own in an emergency, and did so 2 weeks ago while she was at work. To make it easier, she pre-cuts the center hole on 2-3 appliances, so that if I have to do a change, I can do it on my own. Still not easy, standing in front of a mirror, and trying to center the hole on the appliance over the stoma. Very important, as you know, with an Urostomy. Mine is convex, which is not normal. Most are concave and stick out - making it easier to line up. With an in-ward stoma, the hole in the appliance has to be dead center over the "hole" or stoma, if its even off a little bit, it will either end up leaking, or slowing down the flow into the bag.
It's all trial and error until you get a system down of your own, sounds like you got it. I know none of his issues have been easy, hope his spirits are good despite a rough journey. My best to both of you.