Dr. Who, It sounds like you're making the right moves so far. Dr. Menon is certainly one of the best davinci surgeons out there. In case you hadn't already figured it out, Mr. Tall Allen is our go-to guy for the latest research.
You've got a challenging situation, to be sure, but hope is not lost. There are experts out there who are figuring out your rare situation, it's just a matter of finding them. In the mean time, you've found us. Feel free to drop in any time with your questions, concerns, frustrations, and triumphs. You've found a band of brothers who get it.
We have a member here who is probably close to you, 'Compiler' will probably check in soon. He may have some specific thoughts for where you could go and who you could see.
Age at Diagnosis: 56
Biopsy: 3 of 12, G3+3, all on LT side, 20%, 5%, 3%
Clinical Stage T2C
Bone Scan, CT scan negative for spread
RALP on 2/17/15, BJC St. Louis, Dr. Figenshau
58.5g, G3+4, 20%, 4 quadrants involved
PSA 3/10/15: 0.10
My Story: www.healingwell.com/community/default.aspx?f=35&m=3300024