I believe that this is yet another
issue which is unique and different for favorable cases (the majority of cases) and unfavorable cases (the minority of PC cases).
Unfavorable cases have got cancer issues to deal with which sound a lot like other types of cancers, and often involve multiple specialties, ongoing appointments, trying different drugs and maybe clinical trials, salvage treatments, etc. In my personal experience (with my wife's serious, and ultimately lethal cancer), there were many people who really wanted to know out of concern for her. I also realized that having a friend come down with a serious case of cancer can be a wake up call about
one's own mortality...so in those cases I also realized their interest was genuine. In fact, in her last few months, she looked
like she had cancer or something bad, so I remember for example even people we'd encounter who we didn't know; they would not ask "how are you doing," but they would simply wish her well, completely without other comment either before of after.
On the complete other hand, favorable risk cases (many of the respondents here, so far) are generally where the patient's life was not at risk, and in fact many cases are overtreated. Once the patient realized this (often, it is not until after
treatment), then THAT would be a difficult thing to talk about
. There's a general bifurcation of people who may be asking. On the one side, most people know little about
prostate cancer and may think that your life was
at risk...do you really want to get into a detailed descript
ion of how prostate cancer is really a spectrum of diseases, and yours probably didn't need treatment but you went ahead anyhow, and now there's life-altering side effects? Maybe just tell them, "I'm getting by" and hope the conversation goes away after that. But on the other side there's people who KNOW about
favorable-risk PC, and they want to ask about
your treatment and what they really want to know is what you are doing about
your sexual dysfunction and continence issues; or at least as much as you are willing to tell them.
I think more interesting is the challenge for those on Active Surveillance. I would think that there's a desire to share your patient knowledge and education with others, but then again it's going to seem kinda anti-climatic. People ignorant of prostate cancer are going to think you are "doing nothing," and of course you know that's not the case...and in fact those who choose AS have indeed not taken "the easy route" for low-risk cases.
Post Edited (JackH) : 6/3/2016 12:09:34 PM (GMT-6)